Complex Atypical Hyperplasia: Struggling with loss of fertility

Posted by ktmad91 @ktmad91, Dec 8, 2025

Hi Everyone,
It feels weird to be posting here and if I'm in the wrong group please let me know. I'm 34, diagnosed with CAH this past January. After talking with my fiance(f) I decided to go with the hysteryctomy and not risk the offical cancer diagnosis as my cells were already at the highest level before cancer. I've really struggled with this. Being able to have a child has been something I've wanted for such a long time. And it feels like everyone has just moved on, because it was the right choice so as not to risk the cancer. But for me its still so difficult. Having the choice made for me basically has been heartbreaking. And I haven't really found support anywhere with people who understand why its still so difficult for me. Its been 8 months since my surgery and there are days where I will suddenly be hit like a bus. Does anyone else experience this?

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Colleen Young, Connect Director | @colleenyoung | Dec 20, 2025

Welcome, @ktmad91. You're in the right place. You might also appreciate these related discussions:
https://connect.mayoclinic.org/group/gynecologic-cancer/
At 34 making these treatment choices for what "might" happen is so hard. I get that there are days where you feel like you've been hit by a bus. You are mourning the loss of what you imagined and assumed would be your future, having a child. That's hard!

Have you considered talking with a grief counsellor or oncology social worker?