Anyone raised eGFR without medical assistance?

Posted by alexmimi2023 @alexmimi2023, Aug 18, 2025

none of my doctors seem to be concerned about my numbers falling from 42 down to 36 ,even though 42 is already considered low... has anyone here been able to raise their numbers without medical assistance

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Profile picture for cheyne @cheyne

Hi,
One day my doctor told me I had 5 years to go with my kidneys, I'm now plus 8 years and remind her when I see her with great satisfaction, I'm still alive. Anyway being given a expiry date motivated me to take action. I stopped all excessive exercise, went on a "kidney friendly"diet and took it to excess. No red meat, nothing to drink but water, absdolutely no salt or sugar, I'm diabetic, and no man made or aborted foods. I stuck with a small meal per day mainly of vegitable, if possible home grown. No eating out for fear I'd be eating something off the list. Switched to wholemeal bread and plastic butter with shaved ham on and no sauce, shaved ham being the thickness you can see through, no more than one sandwich a day. Changing diet and lifestyle was easy as I was dealing with several health issues. I eventually realised my kidneys would last longer than 5 years and relented on the diet and lifestyle. It had become extremely difficult to stick to my diet it being restrictive beyond reasonable. I learnt that most sugar substitues had the base ingrediant of aspertane, something that causes more damage to kidneys than real sugar, that stimulated me to throw away all the dark soda I had stocked, 30x 2 liter bottles. For those unaware aspertane taxes the kidneys and eats the bones while the dark colouring is chemical which the kidneys can not filter. The recomended amount with fully functioning kidneys is one small glass per day, I was getting trough 2 liters per day.
Now days I still refrain from off the shelf rubbish but have started back on a small amount of salt and sugar. I eat lean red meat once every 2 to 3 weeks but a very small portion. I have advanced to black tea with a splash of trim milk, the milk with all the good stuff removed and a few grains of sugar. I'm still able to tolerate my ham sandwich and will sub it out for 2 boiled eggs occasionally. Because of my other health issues my diet is constrained to simple things and a limited amount of food and fluid per day. Yes I fight hunger every day. I stopped all medication that could effect the kidneys, fortunately I have a very high pain threshold and am able to forgo painkillers. On the rear occasion pain gets the better of me I have opioid based painkillers at hand.
I learnt to bake my own sugar free cupcakes and share the cooking duties so I know what is going into each meal.
Because of my food and fluid constraints I watch the colour of my urine trying to keep it a light straw colour. The theory goes keeping urine between clear to straw colour and your kidneys are working well. If you are consistantly clear you are over hydrating and conversely if it is dark you are under hydrated.
I haven't eaten out in 13 years and not seen fast food at all in that time. I have discovered by restricting my intake of salt and sugar the brain re-educates itself to believing it is not required for life to exist and you rediscover what food actually tastes like, naturally. Funny though I persist with a few grains of sugar in my cups of tea, I don't stir it and it is not enough to change the taste, yet the brain thinks it tastes better! The other side of that coin is that everything pre-made tastes salty or sweeter, that helps me stay away from it.
My mother-in-law died recently at 95, her GFR for the past 7 years averaged GFR18, no medical help or intervention and certainly no restriction on what she ate or drank. Yes her movement was impinged but she lived oblivious to the state of her kidneys. I'm 73 with GFR 38 I see no reason to panic, I have enough to see me through barring anything drastic to change my situation.
Most of us get into a dire panic when first diagnosed because it is not explained to us. CKD is kidney disease not kidney death, yes changes will be required but life goes on. The very day I was told 5 years to go I went home closed my busines, paid off all my debits and wrote my will, then sat and waited for what hasn't come, yet. The only good thing to come of it is I'm ready for the inevitable, retired and enjoying as much of life as I can well aware of how fragile life can be.
Cheers

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@cheyne what a lovely story. You are so motivated and strong to stick to a great diet. I’m so proud of you. I am 69 years old and my GFR is 13 and has been for several years. I eat healthy and live a good life and play sports

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Profile picture for tapdancer @tapdancer

@cheyne what a lovely story. You are so motivated and strong to stick to a great diet. I’m so proud of you. I am 69 years old and my GFR is 13 and has been for several years. I eat healthy and live a good life and play sports

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@tapdancer
Hi, When I found out my mother in law at 95 with no medical help ever had lived with GFR15 for many years and survived reasonably well, I stopped worrying about my GFR. I think the important thing is to do what you can to protect your kidneys, but don't go overboard with it. You have to live a reasonable life or it is not worth the effort in my opinion.
Cheers

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Shall show to my MD who I think is a bit excessive in dietary restrictions especially because I am 86 and have been diagnosed with severe osteoporosis. I am more concerned about fractures and weight loss than kidney failure.

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Hi,
Surprise I have been somewhat lax in following my diet of late but my GFR is holding a 45. Can't say the same for my uncontrollable T2 diabetes, all the states have doubled in the last 6 months. How long before it affects the kidneys, remains to be seen. Although there is likely some effect already just not showing up in test results so far.
Cheers

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Hi I’ve read all your comments and they have me at 3b kidney failure yet my last blood/urine test put my egfr at 46 which indicates stage 3a. Creatinine abnormal so I’m just confused plus I have been drinking water from a hydrogen glass don’t know if that helps or not

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I’m 79, diagnosed with CKD about 12 years ago. No Diabetes or Heart Disease. eEFG33, Creatinine 1.57. All other numbers OK. I am really angry with docs who never told me I should be caring for kidneys in any way. No extra fluids, no watching meds I took, etc. just a wait until you get worse and then we’ll deal with it attitude.
Now I’ve decided I want to live so I’ve taken matters into my own hands and done my research. There are no guarantees but best chance as far as I can see is Stop Kidney Disease by Lee Hull. Mostly plant based diet, almost no salt or sugar, very low protein, amino acid supplements. And 64 oz of fluid a day - mostly water or seltzer. Some people say they’d rather die than be on such a strict diet. Not me. I want to be here to see my grandsons marry and have their own children and enjoy fun times with my friends. Not everything is about food. I love to eat and enjoy everything I put in my mouth. It’s just more work being intentional about your food and diet. Worth it to me!!!

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Profile picture for kittycat70 @kittycat70

I’m 79, diagnosed with CKD about 12 years ago. No Diabetes or Heart Disease. eEFG33, Creatinine 1.57. All other numbers OK. I am really angry with docs who never told me I should be caring for kidneys in any way. No extra fluids, no watching meds I took, etc. just a wait until you get worse and then we’ll deal with it attitude.
Now I’ve decided I want to live so I’ve taken matters into my own hands and done my research. There are no guarantees but best chance as far as I can see is Stop Kidney Disease by Lee Hull. Mostly plant based diet, almost no salt or sugar, very low protein, amino acid supplements. And 64 oz of fluid a day - mostly water or seltzer. Some people say they’d rather die than be on such a strict diet. Not me. I want to be here to see my grandsons marry and have their own children and enjoy fun times with my friends. Not everything is about food. I love to eat and enjoy everything I put in my mouth. It’s just more work being intentional about your food and diet. Worth it to me!!!

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@kittycat70 Welcome to Mayo Clinic Connect! Everyone of us has our similar but unique journey in CKD. How we got here, what is working best for us, etc. And a vast majority will tell you that their doctors were the same, not educating them on how to keep good kidney health. Unfortunately, that dilemma hasn't changed much over the years. It simply boils down to our primary doctors not being all that knowledgeable themselves on kidney disease. Sad, isn't it?

The amino acid supplement you may be taking, if it is Albutrix, is made by the company that Lee Hull works for. You will read here on these pages that diet is the most important factor is taking control of our kidney health! Many of us juggle multiple health conditions that may or may not include other dietary restrictions. Following a sound diet that checks all the boxes for you health wise, can be a chore, but is also worth is. Being able to be part of your own health team is rewarding.
Ginger

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Yes. In late 2016, when the accelerating decline of my eGFR was 3+ mL/min/1.73/year at 40 mL/min/1.73m2, I asked my doctor what should be done to stop the decline, she said,"there isn't much we can do". I began to study, found out I had metabolic acidosis, P-bicarbonate was 21 mEq/L. After thorough learning about bicarbonate therapy, I applied it, and by early 2019 the eGFR rose to 50+. By early 2022 it dropped to 37, i.e., in roughly 5 years it dropped by 3 mL/min/1.73m2. That's a rate of decline of 0.6 mL/min/1.73m2. It's about the decline due to just getting older. You must be very careful when applying bicarbonate therapy. For instance, if your body is sensitive to sodium, bicarbonate therapy is contraindicated. I am now close to 91 years old, and my BP does not rise from high sodium, and I don't retain water, either.
Only attempt bicarbonate therapy supervised by a physician. I am sharing my experience only because you have asked if anyone has upped their eGFR without the help of a doctor. Before doing it, I had studied the professional, peer-reviewed literature online for dozens of hours.

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I am 90years old and have been on Mayo Clinic prostrate cancer Support Group site for about one year and now have joined the Kidney Support group to listen and learn as I fight the battle on two fronts. eGFR is 54.2, sodium 141,creatinine 1.26,phos 107 so I’m a 3a and pushing the boundaries of normal, I have made an appointment with a dietitian who works in renal kidney area and hope to get a reading on how to diet living in a independent living facility with no particular emphasis on healthy diet. Given a copy of renal diet that covers lots of good information but I’d like to get something a little more personal. Will stay in touch. JackB

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Hello:

I am new here. I am responding to alexmimi2023 @alexmimi2023. I had a kidney transplant last year. My eGFR and creatinine increased significantly when I switched to a plant-based diet. I also exercise about two to three times a week. Hydration is important. Protein, potassium, phosphorus, and sodium intake should not exceed allowable amounts for your kidney issue. Please feel free to ask questions.

Tokunbo

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