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Recently diagnosed with MDS with anemia and would like to connect
Blood Cancers & Disorders | Last Active: Apr 22 9:28am | Replies (117)Comment receiving replies
I am in Naples so we share this beautiful State.
The longest I ever went without a transfusion was about 21 days, with the last few days of this time span without a transfusion, I wasn’t sure if I would awake the next day.
However what is mind boggling and eye opening and sobering
is to see how many people are in the blood clinics and blood transfusion centers battling the same condition.
Keep the faith !
Replies to "@jeffreykassover1 I am in Naples so we share this beautiful State. The longest I ever went..."
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@montauk ...23 days without a transfusion, my record. But, going tomorrow for 2 units, Blood count was 6.9. Oh well. It was great at 8.9. About a year now with no real success, but it is a year. Hopefully, something positive will happen soon. All I can say is 'stay strong', the same thing I tell myself every day.