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Recently diagnosed with MDS with anemia and would like to connect
Blood Cancers & Disorders | Last Active: Apr 22 9:28am | Replies (117)Comment receiving replies
@montauk I
I know the feeling. I'm in Boynton Beach, Fl, and mostly housebound. Late afternoons and evenings seem to be better for me. 7.0 probably needs a transfusion. I've gotten so many this year...right now is my longest at 3 weeks. Trying to see if the Remlivid will do anything. Hang in there. Jeff
Replies to "@montauk I I know the feeling. I'm in Boynton Beach, Fl, and mostly housebound. Late afternoons..."
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@jeffreykassover1
I am in Naples so we share this beautiful State.
The longest I ever went without a transfusion was about 21 days, with the last few days of this time span without a transfusion, I wasn’t sure if I would awake the next day.
However what is mind boggling and eye opening and sobering
is to see how many people are in the blood clinics and blood transfusion centers battling the same condition.
Keep the faith !