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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Dec 23, 2025 | Replies (657)
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Profile picture for gama1287 @gama1287

Thanks, I’ve been on HU for one month now, main side effect is fatigue and perhaps constipation , is this a common side effect?

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Replies to "Thanks, I’ve been on HU for one month now, main side effect is fatigue and perhaps..."
janemc | @janemc | Dec 20, 2025

@gama1287

We each experience ET itself, and HU, differently.

So I can only speak for myself. One of the strengths of this forum is hearing what lots of people have to say!

For me, the fatigue comes from ET rather than from HU. When our bone marrows churn out too many cells, that's exhausting. HU has restored my energy and strength as it's lowered my platelet count.

Constipation I do blame on HU -- but I would never have made that connection without this forum!

Drink a lot of water, up your fiber intake, stay as active as you can.

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