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Recently diagnosed with MDS with anemia and would like to connect
Blood Cancers & Disorders | Last Active: Apr 22 9:28am | Replies (117)Comment receiving replies
@montauk
I totally get that feeling but my hemoglobins could be anywhere from 10-8 and I still feel that way. I was a contractor. Very active. Now I watch tv.
Replies to "@montauk I totally get that feeling but my hemoglobins could be anywhere from 10-8 and I..."
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@shoch1957
I was an engineer and now I scour the internet looking at different medications for 6,8 to 7.5 anemia without transfusions.
I know there are no miracle drugs out there, but I interestingly read about other peoples success stories and feel good for them.
I think I have read about every drug write up, as now being a couch potato pseudo scientist.
Because I hover between 6.9- 7.5 without transfusions, and at best peak at 8.5, I dream of what 9.5-10.0 would feel like.
Take care of yourself and cherish your good days, and know there tens of million of people in the world in the same condition.