← Return to Essential Thrombocythemia: Looking for information and support
DiscussionEssential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Dec 23, 2025 | Replies (657)Comment receiving replies
Replies to "Looking for a support group for newly diagnosed Essential Thrombocythemia due JAK2 genetic mutation. This is..."
As Colleen says, it's a STEEP learning curve.
Dip into the discussion here at your own pace.
Just ask and we will all try to help!
@gama1287 welcome and ask away! We all have experience with this and are happy to share what we’ve learned.
Connect

Welcome, @gama1287. Getting a new diagnosis comes with a steep learning curve. You've come to the right place to connect with others who have experience with essential thrombocythemia and having the JAK2 genetic mutation.
To help you connect with others like @carefor @eileen11108 @preacherswife1977 @mlmk0601 @debhammel @janemc @lynnevb @nohrt4me, I moved your post to this discussion:
- Essential Thrombocythemia: Looking for information and support https://connect.mayoclinic.org/discussion/essential-thrombocythemia-1/
If you use the group search, you will find many discussions on a variety of topics. Using 3 different search terms relevant to your diagnosis, gave these results:
- Essential Thrombocythemia https://connect.mayoclinic.org/group/blood-cancers-disorders/
- ET https://connect.mayoclinic.org/group/blood-cancers-disorders/
- Jak2 https://connect.mayoclinic.org/group/blood-cancers-disorders/
@gama1287, what questions do you have? Have you started any treatment?