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Profile picture for 1pearl @1pearl

Hi @irishnanny3 ,
I wear sunscreen and a wide brimmed hat daily and have been for years. I haven’t even taken Hydrea ever, and I have had four basal cell carcinomas removed, numerous actinic keratoses frozen with liquid nitrogen, and just recently a skin biopsy on my face on my side of cheek came back as melanoma insitu and I had a slow Moh’s started. I was not told it would not be removed in one day so that was disappointing yesterday. Anyway, with all the skin issues I have had already, I choose not to take Hydrea as I feel just fine, no symptoms, no heart issues, no clots, not overweight, and exercise daily. Also, my oncologist/hemotologist did not seem to know if I have essential thrombocytosis or primary myelofibrosis. I will have a new insurance starting January 1 which I am hoping will be better. Also, I have CALR1 mutation.

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Replies to "Hi @irishnanny3 , I wear sunscreen and a wide brimmed hat daily and have been for..."

@1pearl Hi Pearl
Since my PV was discovered when I had a stroke and two dvt’s I’ll be taking the hydroxy forever
along with Eliquis
I tried to have it changed to another drug, but my
onco says he doesn’t want to change what works🤷‍♀️
My best wishes to you