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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 20 hours ago | Replies (470)Comment receiving replies
"And I'm worried that I am near dying."
Been there, done that!
I felt doomed for a long, long time after my ET diagnosis.
And I was scared to death to take my first HU capsule (yes, it helps not only with PV, but also with ET, oral cancers and sickle cell anemia. This drug has been used for decades all over the world.)
Two years out, my blood numbers are under control and my energy is back.
lindakay, I'm living proof that there is hope!
Of course you are stressed and sad right now.
Just remember that you're not alone, and that there are better days ahead.
Replies to "@lindakay55 "And I'm worried that I am near dying." Been there, done that! I felt doomed..."
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@janemc
Thank you for saying all you have said. I think my HU is arriving today in the mail and I have changed my thinking and I'm going to take it.
Maybe will start taking it in the evening as I have read it makes folks tired. I also want to do a blood test before so I see where I am starting with the numbers. Also, having tingling on bottom of left foot.
Its about nine days out from bone marrow biopsy and I still have sensations from that in my low spine, but not exactly at the puncture spot.
I just want some peace.