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ADT, maybe not? Anyone opted out of ADT?

Posted by bob1955 @bob1955, Oct 28 6:20am

Has anyone opted out of ADT? I think its effects are possibly too much to sacrifice (at my age, or any age, maybe), but no one has tried to persuade me to have it. Yet.

3 weeks since diagnosis, age 69, 4+3, PSA 10.6, localized, one core, PSMA PET next week. Meeting RO today.

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jime51 | @jime51 | 5 days ago
In reply to @jeffmarc "@jime51 After 8 years of ADT I still don’t feel much fatigue. I go to sleep..." + (show)
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@jime51
After 8 years of ADT I still don’t feel much fatigue.

I go to sleep A little after midnight every night And wake about 6:15 to 6:30 in the morning. I occasionally have fatigue in the afternoon and take a 25 minute nap. That keeps me up till midnight or later even on the days I feel thar need for a nap.

I do run a mile on the track twice a day even on the three days I go to the gym. I drink 16 ounces of electrolytes almost every morning. That enabled me to build up the stamina to run the track without stopping.

It looks like everybody’s different when it comes to their reaction to ADT.

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@jeffmarc You started a bit earlier than I. Starting at 73, being on ADT for 8 years would put me near or into the next life, if family history proves true. Thanks for your inspirational journey!

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johnwf | @johnwf | 5 days ago
In reply to @carbcounter "@jime51 that's an interesting question, is exercise and weight training recommended to those on ADT? I..." + (show)
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@jime51 that's an interesting question, is exercise and weight training recommended to those on ADT? I mean, just thinking about it, it's never good to just laze around, but with zero testosterone it's going to take some serious discipline to keep at it and I have to wonder at the results - could it result in raising testosterone, even a little, and would that be good or bad?

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@carbcounter
I would throughly agree with Jeff. I have just finished 2 years of Eilgard.
During this time I have played squash, light weights at the gym and jogged. JUST DO IT 👍

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johnwf | @johnwf | 4 days ago

@carbcounter
I would mention that I have always been active through various sports. So, for me it was not that difficult. I have run many 1/2 marathons and ran a full marathon 15 years ago.
Basically, I knew how to dig deep when needed. The feel good factor of just small achievements would help you a lot. Believe me! Whilst I embraced having ADT injections, I certainly did not embrace the side effects. I needed a distraction. Go for it but, sensibly you won't regret it.

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carbcounter | @carbcounter | 4 days ago
In reply to @johnwf "@carbcounter I would mention that I have always been active through various sports. So, for me..." + (show)
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@carbcounter
I would mention that I have always been active through various sports. So, for me it was not that difficult. I have run many 1/2 marathons and ran a full marathon 15 years ago.
Basically, I knew how to dig deep when needed. The feel good factor of just small achievements would help you a lot. Believe me! Whilst I embraced having ADT injections, I certainly did not embrace the side effects. I needed a distraction. Go for it but, sensibly you won't regret it.

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@johnwf I hear you, thanks. I've had to embrace something similar for my own situations already.

FWIW I did run this all past my friend who actually has the PC and ADT, and right now with his muscle pain he isn't running anywhere and with a cane he can get from the door to the car, and not a lot more. Given his overall situation at the moment I think his doctors are remiss in not giving him a break from the ADT right now, and watching for consequences. Friend also says at his limited energy level he just - can't. This really isn't like him so I take him at his word.

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johnwf | @johnwf | 4 days ago

I get that, my thoughts are with your friend😊

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bens1 | @bens1 | 3 days ago

Here is a recent article in Urology times on Navigating Newer ADT Combination Therapies. There are some new oral therapies. Perhaps worth a discussion with your doctor?
https://www.urologytimes.com/peers-and-perspectives/fast-acting-flexible-and-focused-modern-approaches-to-adt-in-prostate-cancer

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