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DiscussionPolycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 20 hours ago | Replies (470)Comment receiving replies
Replies to "@loribmt Thank you so much. I so appreciate your time and your thoughts."
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@lindakay55
"And I'm worried that I am near dying."
Been there, done that!
I felt doomed for a long, long time after my ET diagnosis.
And I was scared to death to take my first HU capsule (yes, it helps not only with PV, but also with ET, oral cancers and sickle cell anemia. This drug has been used for decades all over the world.)
Two years out, my blood numbers are under control and my energy is back.
lindakay, I'm living proof that there is hope!
Of course you are stressed and sad right now.
Just remember that you're not alone, and that there are better days ahead.