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Questions about Dr. Bruce Patterson's program
I have been struggling with severe fatigue and PEM as my main symptoms since 2022. I'm 80, live in Indiana and was in great health before Covid struck. I had a short bout of CFS in my 40s and suspect this has a lot to do with what I'm going through now.
I'm interested in knowing more about Dr. Patterson's program. I've read his lab's website, but when filling out the form for bloodwork, discovered I needed to add a local physician, though it says my doc is not required to collaborate. I've also seen the announcement of his new Long Covid Clinic in Traverse City, but I've found no way to access it. My guess is that it will operate the same way. I have questions before deciding to go ahead, but these have gone unanswered through the lab's website. I'd appreciate it so much if anyone has answers to some of these questions:
1. Does Dr. P supply the medication? If so, does he combine the 2 (Lipitor and Maraviroc) or are they separate?
2. Does everyone get the same meds? Is there flexibility for dosages?
3. Who do you work with if you run into problems with side effects? Do they provide easy, quick access and how responsive are they for problems or questions, or maybe this why you need your own local doc?
4. What is your local doc's role in this?
I ask these questions because I tend to be very sensitive to meds and wonder if Dr. P is at all flexible, as in starting with lower doses if the meds are separate? Also, I have an appt with a new doctor of integrative med in Indy in a few months and wonder if I'd best wait until I see him and use his name. This would depend on what role he would play in Dr. P's scheme of things. My regular PCP does not have any familiarity with Long Covid treatments. (Also, maybe Dr. P will have some results from his stage 3 trial by then!)
I am grateful to this group for all the information shared and support and encouragement it provides. I hope you will be able to provide some answers and insights into Dr. Patterson for me.
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@raspy depending on your situation, a sump pump may not do what you need it to. Watch crawlspace ninja on YouTube for some quick advice. He sells a book for $10 that will make you an expert in your neighborhood.
My study says both urine and serum mycotoxin tests work, but they provide different perspectives. Urine indicates mycotoxins leaving your body while serum indicates mycotoxin antibodies in your body. Depending on your Doctor they will choose what suits your situation.
Dr Patterson could not refer me to mold illness treatment. I had to research on my own via my GP, Dr Google, and Dr YouTube.
Best wishes
Dr Patterson just referred me to my own mycotoxin specialist, who prescribed things based on my specific test results. This included cholestyramine, charcoal, and an array of other binders and detox agents. I think anyone's treatment for mycotoxins will depend on both the physician and the test result profile.
I'm not sure if Dr Patterson treats for mycotoxins in his regular practice but at least he doesn't via the virtual route.
But once I get through this, assuming I make some progress, I'll probably do the realtime labs mycotoxin test again and also the cytokine 14 panel, which is one that Dr Patterson requires.
Good luck!
Thank you so much for this additional, helpful information. This is a great community! I will watch the video etc. as you suggest and keep learning. Just wish it weren't so overwhelming. The To-Do list just keeps getting longer. Sigh. But we keep on, keeping-on.
has anyone taken the prescribed maraviroc, pravastatin , and successfully eliminated the phlem and lung nodule problems associated with long covid
Update: Mycotoxin testing lab details. Since I've had all the blood tests that Bruce Patterson would do at this stage, I opted to begin direct contact with labs that do mycotoxin support already using urine tests. My first lab reply came from this link: https://realtimelab.com/ I sent 3 labs, Texas, Kansas, Portland a summary of my Long Covid journey and prior testing/imaging. Texas replied and it was more than I expected. Qualifications: Dr. Hooper and Dr. Bolton founded RealTime Laboratories in 2005 after extensive research and studies into the harmful effects of mycotoxin poisoning on the human body. They offered me 3 options for the Mycotoxin kit:
1. Have my primary care provider go to the RealTime Lab and sign up to become a provider using them as the lab for mycotoxin testing; but, if my local physician did not wish to become a provider for mycotoxin lab work...
2. I could sign up directly and have the kit sent to my home, then send the sample back for lab work and they would mail be the final results in detail. Once I have the labs, I can then take details to my Primary or if they did not wish to be a supporter of this mycotoxin work...
3. RealTime Labs sent a temporary password so I can visit their web site and review local doctors, NPs, clinics, naturopathic healers, etc. anywhere in American that I would like to be supported by a medical professional already working with RealTime Labs so I could select a local expert in mycotoxin work. I have 5 within 25 miles of where I live.
@pattig09
Thanks for this incredibly detailed and helpful information. Good luck to you. Let us know how the treatment goes and the effect on your symptoms.
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1 ReactionI live in Maine, not only is Long Covid not spoken of by any Dr in this state but Neither is anything like Black Mold exposure that is clearly causing other issue with long covid very frowned upon speaking of I have had both and I believe I will have to treat both myself . A 49 yr old female with a small amount of medical experience but no where near enough
Sometimes it feels like we're wandering in the medical wilderness. With no clear treatments, it's all trial and error as to what will work for you. My hope is to at least have a doctor tell me if what I want to try will do me any harm. Best of luck to you.
@raspy I've seen so many docs, including ID dept head at a teaching hospital, and was basically dismissed - they can't treat symptoms, know far too little about what to do, and so just give up -- or it costs them to see post COVID patients when there is nothing they are doing in their practice to treat it.
I'm supposed to see my third ID specialist and have to psych myself into being open and not cynical on arrival! It's been exhausting telling the story over and over and over. I even wrote it out in bullet points with timeline and "we'd rather hear you describe it" is what is said.
As my symptoms increase, I believe there is a virus - new studies show there is both DNA makeup and viruses in our bodies - that continue to "attack."
I'm so tired of it all and if nothing can be done for years to even make us comfortable, say it!
JE
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