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Replies to "Thank you for your quick reply . May we know what type of MDS you have..."
Blood Cancers & Disorders | Last Active: Jan 11 9:18pm | Replies (83)
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Thank you for your quick reply .
May we know what type of MDS you have ?
Since Vidaza is starting to not work after 19 cycles , his doctor suggested him to get his 3rd bone marrow biopsy to see what's going on to confirm new diagnosis .
I have heard some patients use Vidaza plus another drug to make Vidaza to work better .
I have heard of patients go for clinical trials .
All very scary and sounds disappointing after being on Vidaza and doing so well .
If you know of something that can be helpful for us , please share !
God bless you all and have a blessed holiday ......
Replies to "Thank you for your quick reply . May we know what type of MDS you have..."
@vng
Also, IPSS-R score 1 for cytogenetics
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@vng
As far as the type “ patient underwent bone marrow biopsy for the macrocytosis. This showed MDS with ring sideroblasts. Cytogenetics showed 46 XY. Next generation sequencing showed an SF3B1 mutation confirming diagnosis, along with hemochromatosis. I’m not familiar with Vidaza at all.