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Recently diagnosed with MDS with anemia and would like to connect
Blood Cancers & Disorders | Last Active: Apr 22 9:28am | Replies (117)Comment receiving replies
@shoch1957
My husband was on Reblozyl when first diagnosed MDS . It only worked for him for about 6 months . Then doctor switched him over to Vidaza chemo . He had 19 cycles and now chemo seems to be less effective .
Has anyone tried Vidaza plus some other drugs to get back to good blood counts ?
Can you share your experiences besides being on blood transfusion support ?
Husband is 83 years old , always been healthy until MDS hit him 2 years ago
Replies to "@shoch1957 My husband was on Reblozyl when first diagnosed MDS . It only worked for him..."
@vng
Every 3 weeks
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@vng
I’ve been diagnosed for 4 years now. They started Retacrit injections for first 2 years then it became ineffective. They started reblozyl injections every weeks since. I have not yet needed transfusions.