@hello1234 it is very expensive and I can’t afford to spend that much on 1 drug. Not sure what will happen. It is expensive even on GoodRx. Thanks for trying to find some info for me.

Hi @hello1234 ,

I hope you had a wonderful Christmas and Happy New Year. Hope you are doing well!

I'm sorry for the belated response but things had been very hectic this Christmas and totally forgot. I have been worried because my hubby's creatinine level has gone up by about 0.2. Neph doesn't seem too concerned about it because he says hubby was at that level at one time(beginning of transplant 3 years ago). Not sure if the increase in creatinine might be due to him drinking more of the Sparkling Ice drinks and less water these past 3 months? He also had an MRI (with contrast) 2 days prior to lab and I thought the contrast may have affected creatinine but both neph and urologist(ordered MRI) said these 2nd generation contrasts are safe for kidney patients. At any rate, hubby has return to drinking mostly water now and we will see if that will help improve his creatinine level. ..
As far as the Everolimus medication, fortunately hubby hasn't had any bad episodes with it other than the beginning. He did get mouth sores but only once and his lipids did go up but has since stabilized. Also I recall him having some protein in the urine when he first started Everolimus(which is another side effect of Everolimus) but the next lab he was cleared - neph checks is periodically. Hubby takes Everolimus 0.75 mg BID so that's not really a big dose. I'm thinking a bigger dose may give more side effects i don't know - this is something you can discuss with your doctor. Mayo says his Ev trough level should be 4-7 and his Tac 3-5. So far he is able to maintain this trough levels without changes in dosage. So far his experience with Everolimus hasn't been bad. Recall the reason Mayo switched him to Everolimus was because Myfortic was too overly immunosuppressed and his CMV kept returning. Finally after almost a year since transplant they switched him to Everolimus but kept him on Tac.