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Replies to "I am 80 years old and have hemoglobin levels between 7.0 to 8.5 with transfusions every..."
Blood Cancers & Disorders | Last Active: Jan 11 9:18pm | Replies (83)
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I am 80 years old and have hemoglobin levels between 7.0 to 8.5 with transfusions every 3-4 weeks for 5q.
I have gone lower than 7.0 on a few occasions.
Revlimid did not work in my case.
I am tired but at your hemoglobin levels I would think you would not be so affected.
To me a hemoglobin of 9 or above would be my objective for a fuller life.
Replies to "I am 80 years old and have hemoglobin levels between 7.0 to 8.5 with transfusions every..."
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@montauk
I can definitely relate. I am 78, and my MDS was diagnosed about a year ago. Tried everything with no success—transfusion dependent now and receiving blood about every two weeks. Revlivid did not work for me either, nor did it after about 6 months, despite trying it again based on another opinion. It's a battle every day with sluggishness, sleep, water retention, and nausea. I guess, STAY STRONG is my only advice. Keep in touch on this site, and hope something works. Best of luck.