Has anyone been diagnosed with Meningioma with edema?

@as72 That is good news. You are in the 70% group that have positive results from the steroids.

Greetings all, I had my 3 month follow up for my meningioma (1.8 cm with mild swelling, left occipital lobe midline). It was an incidental finding, no symptoms. I was happy to hear it is stable with no change. Both neurosurgeons at my preferred med center agree that I can wait and repeat the scan in 6 months. I am so glad I got this second and third opinion. My first consult at a different med center was adamant that I needed to have gamma knife surgery and specifically stated I am not a candidate for watchful waiting. The extra time also gave me the opportunity to do my own research. Best wishes to all.

@dailygift
That’s awesome news!
So happy for you!!! I too, have incidental finding of 1.8cm meningioma, mild headaches and mild assoc/edema. I just saw neurosurgeon at Stanford yesterday who said I’m not a candidate for keyhole, EES, or cyberknife. There’s a 50/50 chance that it changes. I asked what she would do if she were me. She said she would wait 4 months and do another MRI to see if it changes. The first neurosurgeon I saw said I was not a candidate for watchful waiting. My third consult this Monday cancelled. After reviewing my file said he doesn’t treat these and would be better off getting a third consult from UCSF. My internist who referred me is now saying if I like Dr at Stanford to stick with her as too many cooks in the kitchen is bad.
If I wait and watch and it changes I’m looking at craniotomy which comes with risks. I prefer to wait but anxious about getting more neurological symptoms. Tough choices to make and looking at serial MRI’s.

@as72 ultimately what helped me relax about this was the result of my followup MRI. Seeing no change helped me AND the doctors realize I could wait. Any procedure has risks and we and they have to weigh risk vs. benefit. So they think about what can happen if you wait. Lesion can get bigger. With evidence of no change in an interval of time they were more comfortable saying ok to wait. I understand not everyone has this option to wait. We all have different tumors, locations, symptoms, etc. This has been my experience. I will be thinking of you and hoping your headaches resolve and you get no new symptoms! Keep in touch and take good care of yourself.

I had surgery to remove two Meningiomas, one was a grade 2 and other grade 1, about 5 weeks ago and am doing very well. My concern now is it’s up to me if I want to do radiation. I’m pretty sure I will, but have some trips scheduled and don’t want to stop my life….

@janwaller
Thank you for responding. Glad to hear you are doing well. How was it found and did you have any symptoms? Where was your surgery done? What size?

In 2021 I had an mri done to look at my ear. My ear was fine BUT you have Meningiomas and you need to see a doctor about them. Had an MRI done every 3 months, then annually. I had a focal seizure on 11/17/25, surgery on 11/19. I was at Central Dupage Hospital in Winfield IL. Not sure of the size but it was putting pressure on my brain which caused the focal seizure. It was on my left side of my forehead to the top of my ear, a big “c” incision. The doctor only shaved my hair where he cut, so I just had to move my part over and no one could see it! And I was able to shampoo with baby shampoo on day 3. Now I can’t drive for 6 months and I’m on seizure medication.