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Has anyone been diagnosed with Meningioma with edema?
Brain Tumor | Last Active: 3 days ago | Replies (24)Comment receiving replies
Greetings all, I had my 3 month follow up for my meningioma (1.8 cm with mild swelling, left occipital lobe midline). It was an incidental finding, no symptoms. I was happy to hear it is stable with no change. Both neurosurgeons at my preferred med center agree that I can wait and repeat the scan in 6 months. I am so glad I got this second and third opinion. My first consult at a different med center was adamant that I needed to have gamma knife surgery and specifically stated I am not a candidate for watchful waiting. The extra time also gave me the opportunity to do my own research. Best wishes to all.
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@dailygift
That’s awesome news!
So happy for you!!! I too, have incidental finding of 1.8cm meningioma, mild headaches and mild assoc/edema. I just saw neurosurgeon at Stanford yesterday who said I’m not a candidate for keyhole, EES, or cyberknife. There’s a 50/50 chance that it changes. I asked what she would do if she were me. She said she would wait 4 months and do another MRI to see if it changes. The first neurosurgeon I saw said I was not a candidate for watchful waiting. My third consult this Monday cancelled. After reviewing my file said he doesn’t treat these and would be better off getting a third consult from UCSF. My internist who referred me is now saying if I like Dr at Stanford to stick with her as too many cooks in the kitchen is bad.
If I wait and watch and it changes I’m looking at craniotomy which comes with risks. I prefer to wait but anxious about getting more neurological symptoms. Tough choices to make and looking at serial MRI’s.