@swats005
Hello Swats,
I know you posted this comment a while ago and maybe you are not even following this discussion anymore, maybe you already found help and are better now, but what you describe is just so similar to my health issues.

My problems started after turning 50. I have been active all my life: fitness, weight training, running, skating, cycling you name it. It started with pain in my left foot, then tingling both legs, then burning calves, cramping, crippling pain- as soon as I STOP MOVING. For 3 years now I have had not a single day without pain. I have consulted every possible doctor, health carer, PT, alternative practitioners etc. My blood work is absolutely fine, completely healthy. No diabetes. I have had my blood vessels tested, spine, heart, everything.

The doctors simlpy put me down as having chronic neuropathy pain (I suppose in the US it would be called idiopathic neuropathy). Medication has not helped so far.

However, my never-giving-up spirit has made me pro-actively search for answers. To find a proper diagnosis is real detective work. It took me tons of perserverence, energy and money to find a few clues. So far, I know that I have suffered major mercury poisoning (lab tested), I have MCAS (mast cell activation syndrome) and I have tested muscular hypertonia (EMG) which suggests I have spasticity due to an upper motor neuron disorder. That could explain why the more I move the more pain I have at rest and the terribke cramp attacks, but it is very difficult to diagnose.

As John has mentioned there can be many reasons for muscle cramping from a simple lack of electrolytes to a more severe condition such as UMD or mitochondrial disorders.

All I want to say here is: even if there seems to be no hope left, keep trying! Look into every box available you can find to get some answers! Collect all thosr puzzle pieces to help you get the full picture. That is what I am trying to do. And maybe, just maybe, someday I will find solutions.

Good luck to you!