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How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Blood Cancers & Disorders | Last Active: Mar 29 8:26pm | Replies (113)
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@huronshores

Have been on Hydrea for over 3 years, plus aspirin. Present dose totals 24x500mg per week. That is what it has taken to get platelets down to 324 at last lab test. Yes, I have had a rash on my back, which I think is from Hydrea, but how can you know for sure? @huronshores

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Replies to "Have been on Hydrea for over 3 years, plus aspirin. Present dose totals 24x500mg per week...."
claire39 | @claire39 | Feb 20, 2021

Hi there huronshores......I don't think you can ever be sure what the rash is from but mine started Feb. 2020 after I had cataract surgery so I blamed on that but now I hear of others with ET and MPN who experience rashes in various places. I also have occasional breakouts on my scalp which I have to treat with Taro-momenta some lotion which somewhat helps also desloratadine
Allergy pills help. My platlets are currently at 408 after almost 3years, I feel it could be lower after all this time but that is where I am at. Hope all is well with everyone

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claire39 | @claire39 | Jul 7, 2022

Hello Huronshores......hope all is going well for you during this time of covid. I have had three vaccines to date. I had been advised by my hemotologist to stop taking Hydrea for four weeks after each dose. I wondered if others had to do the same. I had bad side effects, like very low hemoglobin, shaky and dehydration. I am now afraid to have the fourth dose if I have to repeat that procedure.
Have you had your vaccines and what course did you follow. I really appreciate any feedback you can give me. Thanks

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