Connect
← Return to How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Discussion
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Blood Cancers & Disorders | Last Active: Mar 29 8:26pm | Replies (113)Comment receiving replies
Sorry the Hydrea did not work for you, stevehurlburt, I have been on it for
over two years with good results, except for continuing fatigue and red
pinpoint rash on my face, I have tried every cream possible cannot get rid
of it. Any suggestions for this problem.
I still cannot access the forum because my cookies do not support it so I
hope SOMEONE sees this post and comments. God bless all of you who are
going through the pains of any kind of blood cancer
.?....Claire39
Replies to "Sorry the Hydrea did not work for you, stevehurlburt, I have been on it for over..."
Side effects to all are to be expected…it comes down to what manages the condition AND what side effects are acceptable. I have no suggestions for a rash or fatigue, but after 6 months of injections, I slept 14 hrs a day and finally convinced folks I wanted back on Hydrea!
Within a week I was not even napping! Need to watch the cloudy lung, but scans show no progress and no disappearance after being off Hydrea for six months. Turns out it could be residual effects from assymtomatic Covid….or my blood pressure meds. Just know, rare conditions are NOT a fully understand by the best medical experts! Be your own advocate…and good luck
Connect
Hi @claire39, we can see your post. If you're experiencing technical issues with the website, your can contact me using this form https://connect.mayoclinic.org/contact-a-community-moderator/
Now to your question about the side effects from Hydrea. Rash is listed as a common side effect.
@huronshores @mjpm2406 @lefsequeen @tresman10 @cblowers1 @shenriq have you had a red pinpoint rash as a side effect of hydroxyurea?