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shoch1957 avatar

MDS and anemia

Blood Cancers & Disorders | Last Active: Jan 11 9:18pm | Replies (83)

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Profile picture for janetlen @janetlen

@shoch1957 I experienced the same thing, especially when HG was in the 9s and dropping. I did not appreciate being told it was something else. I had fatigue early on. It was one of my first symptoms. I was told I should not feel that either. Eventually, I had my heart checked and a pulmonary function test. The anemia caused the racing heart. Since I was symptomatic, my transfusion point was set at 8 instead of 7.

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@janetlen
Interesting. I too had heart & lungs tested to no avail. I don’t understand why we’re being told that this is not a symptom of MDS.