Hi Pearly, I’m Tammy, almost 61 year old diagnosed at about the same time as you. I have an out-if-control Calreticulin gene in my bone marrow. I will have to deal it for the rest of my life. It’s very rare and, just like you, my platelets would be nearly at 1 million. I’m a little confused by the number you mentioned. Sorry. My number is reported as 800 but then x 1000, or 10 to the third, or 10 cubed. Whichever way you report it, it’s equal to 800,000. We have gotten it way down to 523, or 523,000 with Hydrea. That’s a good number, but it also means that I don’t produce the other parts of my blood so well. It’s better than throwing a clot or bleeding out if I had an accident. Anyway, since it’s rare, we need to be here for one another because I highly doubt if we will find a physical local group. Prayers for you, your family, care team and your endeavors.
Tammy

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