Low blood sugar on prednisone

Posted by mech @mech, Dec 15 12:08pm

Has anyone experienced shaky hands and low blood sugar while on prednisone? I'm tapering from 25 (now on 23mg) and this has happened from the beginning, since October. Not every day, but if I don't eat, I get worse. I'm otherwise very healthy, except for PMR.

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Are you by chance on an anti inflammatory diet? Or dehydrated? My sugar has been low at times and it is often because I haven't hydrated enough. I'm also eating way better than I ever have, in other words, I've cut the bad carbs and sugar out.
I keep peppermint or butterscotch hard candy around and have one if I get lightheaded. I haven't found any "good" candy lol, but I do eat a little bit of chocolate almost dailey. (It has the least sodium.) If I miss a day, I think my sugar goes down because I am light headed.
I also suffer from naseau to the point I thought something else was wrong.
You're right. This disease is tough.

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Profile picture for cyndiefromnc @cyndiefromnc

Are you by chance on an anti inflammatory diet? Or dehydrated? My sugar has been low at times and it is often because I haven't hydrated enough. I'm also eating way better than I ever have, in other words, I've cut the bad carbs and sugar out.
I keep peppermint or butterscotch hard candy around and have one if I get lightheaded. I haven't found any "good" candy lol, but I do eat a little bit of chocolate almost dailey. (It has the least sodium.) If I miss a day, I think my sugar goes down because I am light headed.
I also suffer from naseau to the point I thought something else was wrong.
You're right. This disease is tough.

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@cyndiefromnc I am doing mostly anti inflammatory diet. Cut sugars and sodium, healthy carbs only. I hydrate well. Just weird how I get shaky and a little irritated until I eat something. Ugh

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I’ve been having a terrible time with hypoglycaemia for the last 4 months brought on by reducing Prednisone…only concluded that lately and are having cortisol testing tomorrow to see where to go from there …has taken me a longtime as I’m waiting to see endocrinologist so the only advice I had was from these chats …was down to 1 mg prednisone but went back to 3 mg which helped a lot but am still crashing below 4 mmol all night long …got gp to request testing and emergency visit to endocrinologist…don’t know why I was never followed for cortisol levels so I suggest to others don’t wait if you are worried !

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Profile picture for nancy334 @nancy334

I’ve been having a terrible time with hypoglycaemia for the last 4 months brought on by reducing Prednisone…only concluded that lately and are having cortisol testing tomorrow to see where to go from there …has taken me a longtime as I’m waiting to see endocrinologist so the only advice I had was from these chats …was down to 1 mg prednisone but went back to 3 mg which helped a lot but am still crashing below 4 mmol all night long …got gp to request testing and emergency visit to endocrinologist…don’t know why I was never followed for cortisol levels so I suggest to others don’t wait if you are worried !

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@nancy334 wow best of luck to you.

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Profile picture for nancy334 @nancy334

I’ve been having a terrible time with hypoglycaemia for the last 4 months brought on by reducing Prednisone…only concluded that lately and are having cortisol testing tomorrow to see where to go from there …has taken me a longtime as I’m waiting to see endocrinologist so the only advice I had was from these chats …was down to 1 mg prednisone but went back to 3 mg which helped a lot but am still crashing below 4 mmol all night long …got gp to request testing and emergency visit to endocrinologist…don’t know why I was never followed for cortisol levels so I suggest to others don’t wait if you are worried !

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@nancy334
Just saw my endocrinologist today after a 2 month wait to get in. I think anyone with PMR on prednisone should be under the care of an endocrinologist. I just reached the 5 mg mark and he said it was important to get a fasting cortisol blood test before tapering any further. I’ll be doing that tomorrow.
Best wishes to you… Seems we need all kinds of specialists with this condition!

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Profile picture for caroljeand @caroljeand

@nancy334
Just saw my endocrinologist today after a 2 month wait to get in. I think anyone with PMR on prednisone should be under the care of an endocrinologist. I just reached the 5 mg mark and he said it was important to get a fasting cortisol blood test before tapering any further. I’ll be doing that tomorrow.
Best wishes to you… Seems we need all kinds of specialists with this condition!

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@caroljeand yes, we need a team! Good luck to you and thanks for the suggestion!

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Profile picture for mech @mech

@caroljeand yes, we need a team! Good luck to you and thanks for the suggestion!

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@mech
Cancer patients have teams of doctors to help pave the road to recovery. PMR is not a one dimensional illness. I need the expertise of an endocrinologist, ophthalmologist, and a gastroenterologist at the very least. The rheumatologist stays in his own lane and can’t advise on all the other issues that pop up…. I’m always referred back to my primary care.

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Profile picture for caroljeand @caroljeand

@mech
Cancer patients have teams of doctors to help pave the road to recovery. PMR is not a one dimensional illness. I need the expertise of an endocrinologist, ophthalmologist, and a gastroenterologist at the very least. The rheumatologist stays in his own lane and can’t advise on all the other issues that pop up…. I’m always referred back to my primary care.

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@caroljeand

Prednisone is not a one dimensional treatment. Prednisone is said to have an effect on every cell in the body. Almost all cells have glucocorticoid receptors. Because these receptors are present in almost every cell, prednisone affects numerous bodily systems. Prednisone has therapeutic benefits but it comes with a wide range of potential side effects. It turned out that I needed multiple medical specialists to manage all of my Prednisone side effects.

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Profile picture for Mike @dadcue

@caroljeand

Prednisone is not a one dimensional treatment. Prednisone is said to have an effect on every cell in the body. Almost all cells have glucocorticoid receptors. Because these receptors are present in almost every cell, prednisone affects numerous bodily systems. Prednisone has therapeutic benefits but it comes with a wide range of potential side effects. It turned out that I needed multiple medical specialists to manage all of my Prednisone side effects.

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@dadcue this is just crazy. It's like the "cure" is actually worse for us than the disease! I wish you well, and thank you for the reply

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Profile picture for Mike @dadcue

@caroljeand

Prednisone is not a one dimensional treatment. Prednisone is said to have an effect on every cell in the body. Almost all cells have glucocorticoid receptors. Because these receptors are present in almost every cell, prednisone affects numerous bodily systems. Prednisone has therapeutic benefits but it comes with a wide range of potential side effects. It turned out that I needed multiple medical specialists to manage all of my Prednisone side effects.

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@dadcue
I just wish those specialists could work in concert with each other instead of us having to arrange appointments ourselves which could take months to get in and months to get answers to all the different issues going on with our bodies, while the steroids are terrorizing our bodies.
I feel fortunate to have been able to navigate this journey so far but feel bad for those who are unable to manage a care program or have minimal medical support.

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