Sjogrens Syndrome and sinus drainage

@lgreg Yes, overnight is when the dry mouth affects me the worst. I don’t sleep well, at all, due to dry mouth waking me, numerous times, then having to take a sip of water. This means some napping, during the day, when I can. Aggravating !

I’m not a doctor, but have you tried to eliminate certain foods? I’d start there by having a food sensitivity test done. You may also have high histamine in your body caused by eating certain foods. Good luck!

@lgreg I have a very sensitive body and even eye drops bothered my eyes…until my eye doctor had me try Ivisia Eye Drops. They are the leading eye drop brand in Italy and they don’t irritate my eyes as there aren’t any preservatives in them. They’re available over the counter at most drug stores.

@lgreg I use an ointment plus a gel at night for my eyes, and Oracoat Xylimints for my mouth. Both together has made a noticeable difference.

@lkirnbauer going to check into this ! I see my allergist tomorrrow

Wrong spelling. Sorry. Is ASTEPRO.

@dederickve that’s the first spelling I’ve ever seen lol I’ll probably misspell his message I usually do not noticing until it’s posted. Thanks though for making sure we had the correct spelling. That is one thing I like about this group were able to tell our symptoms and successes that at times would be worth the suffering to help someone else learn.

@sbtheplumber1
I rect to almost evrything including Systane. However can use Soothe nighttime lubricant - messy but it does help.

I haven’t been diagnosed with Sjogren’s, but a positive SSA indicates it. I do have dry eye. I also have a lot of postnasal drip and trouble swallowing. The area under my jaw is swollen. I was told my G.I. would be the best person to see and have an endoscopy done. I couldn’t tolerate CPAP so I had an Inspire device implanted. My specialist said he thinks the swelling under my jaw is scar tissue from the inspire implant. The procedure was surgical and was a lot more complicated than I thought. But now that I have the hang of it and know that the doctors office can program it, it’s a lot easier to deal with. I would suggest, however, asking your doctor a lot of questions if you decide to try Inspire. I’ll be praying for you.

Yes, I am the same as you. I have CVID, Common Variable Immune Deficiency, so I see an immunologist. I do infusions to myself weekly (subcutaneous injections). Basically, my antibodies are on a permanent vacay! I am putting other people's antibodies into my body with the infusions/protection against the flu, covid, pneumonia, etc.. in the medicine for the infusion.

Have you seen an ENT Dr. yet? They should order a CT scan and see what your sinuses look like? I have been numerous times to the ENT Dr. Only certain ENT Dr's do surgery, not all ENT Dr's do surgery or want to do surgery on you. I had recent surgery in 2023- sinus surgery-outpatient, basically I had blockages in my sinus cavities, so they went in and cleared it all out. There's also a "balloon" type procedure that is in office and I had that done too. It helped tremendously, I feel so much better after both procedures. If you haven't seen one, I would encourage you to go see one and request for a CT scan to be done, if you haven't had one done on your sinuses lately.
Do you do the netti pot or Navage? I do this daily and it helps a lot. I get numerous sinus infections, ear infections and upper respiratory infections, that is the CVID. I use to get anywhere from 6-8 in 1 year. I was sick most of the time, on antibiotics or steroids, going to the Dr's. I was miserable. Use saline solution to help with your dry nose, I use that. I also use flonase too. I have found I am allergic to many different things outside, grass, trees, mold, pollen, dust, etc... It helps me to wear a mask when I am outdoors and in big places with lots of people I wear it inside as well too. I take Zyrtec every night and have for many years.
I have dry eyes, dry mouth and I thought I might have Sjorjen's. Went to Rheumatoid Dr and she tested me and she said no, I don't have that. I also have shortness of breath, asthma, 2 lung nodules (tiny), bronchiestasis-scarring on the lungs, coughing asthma, sore throat, difficulty swallowing, drainage.
I have done allergy shots- 3 different rounds- when I was young, when I was in my 20's, when I was in my 40's. I never really noticed a huge difference with allergy shots, my allergies have always been bad to deal with. I hope you have better luck that I did. They are expensive, so I gave up on allergy shots. I have moved on to a Functional Medicine Dr., I have some fatigue that I don't understand why I have it. The lady I go to is wonderful, she did extensive testing on me- with blood work. She is finding I am lacking in B vitamins and need additional supplements. I have memory issues as well, so she is giving me a supplement for my brain issues. Seeing a Functional Medicine Dr is more costly, however I am seeing a lot of benefit from it. It may be something you might want to explore in the future. Sometimes insurance will pay some on it and other times they won't pay on it, depends on what it is, I have found with insurance. Do you use a netti pot or Navage? If you don't, I would highly recommend getting one of these and using it, it does really help you feel better. Hope you feel better- I am on my 2nd steroid and 2nd antibiotic, as I am not feeling well right now. Saw the ENT Dr. today and she ordered a CT scan and she is doing testing on my phlegm to make sure nothing else is going on.