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DiscussionHow do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Blood Cancers & Disorders | Last Active: Mar 29 8:26pm | Replies (113)Comment receiving replies
Replies to "Hello @huronshores I appreciate you posting your concerns about Hydroxyurea and the redness on your eyelids..."
I take hydrea 500 mg on MWF only. Started out taking 2 500 mg 7 days a week - which threw blood disorder 180 degree so had to balance things out. I have no symptoms tolerating hydrea.
Taking oral Hydroxyurea for over two years. 500mgx2 day to begin increased to 16 pills week. Platelets seem to go up and down and up in 600 range in Jan. So Haematologist wants to increase again. Eye problem began in August 2019 and has continued in various ways since. Have been to Optometrist, Physicians assistant here and they don’t have knowledge of the meds being cause. Have told Haematologist but he did not even look at my eyes and suggested I get more sleep! He does not want to hear about this it seems. I think I may go off the meds to see if eyes get better.