Connect
← Return to How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Discussion
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Blood Cancers & Disorders | Last Active: Mar 29 8:26pm | Replies (113)Comment receiving replies
Welcome to Connect, @pearly, and thank you for sharing your history.
Essential thrombocythaemia (ET) is indeed a rare chronic disease, and while I search for Connect members who have some information about the Seattle area, you may wish to view this past discussion on essential thrombocythemia (ET): Essential thrombocythemia: http://mayocl.in/2ph8TpN
I hope @twhite @piglit @deborahgrace @tessa will return to share some insights.
In this discussion, "Myelofibrosis w/ JAK2 mutation," http://mayocl.in/2oe4PaE, @wellness3070 @susanvij @bijou discuss their experience with hydroxyurea.
And, here is some information from Mayo Clinic as well:
Hydroxyurea: http://mayocl.in/2oSw3GB
Essential Thrombocytemia: http://mayocl.in/2odW8gx
@pearly, have you had any clotting complications from ET? How are you managing the peripheral neuropathy?
Replies to "Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed..."
Connect
Thank you for the info. Initially, Sept, 2016 my platelet count was in the millions & I had what I thought were TIAs -- dizziness, visual disturbances, numbness/tingling 3 fingers lt hand --- which were temporary, maybe 3 minutes at a time or so, but became more frequent and led me to seek medical help. My oncologist does not think these were TIAs but whatever they were, they were relieved when he put me on a baby ASA/day and the hydroxyurea. He started the hydroxyurea 500 1q3days for 2months, then bid 2 months, now tid for 3months. He thinks the Lt leg peripheral neuropathy probably not due to the ET, and if not relieved in a couple months will order some MRIs & PT. Platelets gradually going down. Wondered if anyone else had these symptoms?