Off Prednisone but still feeling new type of pain

@54pontiac yes we sound very similar. My pains move around. Lately my knees bother me to wear it difficult to bend and stand

I had ChapGPT draw up a PT type strengthening exercise routine for me based on these symptoms. He knows I had PMR 😆. It focuses on knees, shoulders, arms.

The other odd place I have a lot of pain in the morning is in my hands. 🙄

I had a lot of neck pain also. I’ve been getting deep tissue massages which have helped there a lot.

My orthopedic doctor can’t believe how tight my back leg muscles are. He recommends magnesium which I’m already taking plenty of.

I saw functional doctor. She recommended GP157 peptides for 3 months but it’s quite expensive.

@54pontiac yes we sound very similar. My pains move around. Lately my knees bother me to wear it difficult to bend and stand

I had ChapGPT draw up a PT type strengthening exercise routine for me based on these symptoms. He knows I had PMR 😆. It focuses on knees, shoulders, arms.

The other odd place I have a lot of pain in the morning is in my hands. 🙄

I had a lot of neck pain also. I’ve been getting deep tissue massages which have helped there a lot.

My orthopedic doctor can’t believe how tight my back leg muscles are. He recommends magnesium which I’m already taking plenty of.

I saw functional doctor. She recommended GP157 peptides for 3 months but it’s quite expensive.

@abbeyc

I had lingering pain after I got off Prednisone. It was amazing how much deep muscle massage hurt in all of the places where PMR used to hurt. After every deep tissue massage session the pain was less until the lingering post PMR pain went away.

@abbeyc I had a full hormone test done. testosterone was a little low 350. So I bumped up my testosterone to 650 with a daily cream. I also started taking BPC157. My primary care was prescribing it through a compounding pharmacy. I took it 6 months and noticed no difference. The compounding pharmacy was also having trouble with supplying it. So I dropped it. I also looked at all my medications. I found the one blood pressure pill was causing some fatigue. I switched it out. I went thru my medications one by one and ruled out any side effects.

My rule of thumb is, no one has “the” answer. I vote for Tylenol for arthritis…recommended by Rehumy. Up to 6 per day, and use as needed. Keep trying. My functional movement specialist treats it as mostly neurological….. seeing good results for sometime now.

I started on 60 mg of prednisone in July 2024. At the beginning of November 2025, I tapered to zero mg. I felt pretty good the last few of months of my taper. In mid-Nov, I started getting some familiar aches. Started with my knees and hips. It's since moved to my wrists and shoulders. The pain is all day. In the mornings, my fingers are stiff and ache. Fortunately, the hands improve.

I finally broke down and contacted my rheumatologist and told her what was going on. She suggested that I stay taking 2 mg. of prednisone daily. I took my first dose this morning and much of the pain has decreased.

I hate that I had to begin taking prednisone again. I have been taking monthly infusions of Actemra, since Jan 2025.

@ropnrose my question about going back on Prednisone is .. is that just to feel better only? It won’t help whatever it is go away right? What reason did she give?
Thats what I struggle with. Going back to the devils Tictac and feeling better but at what cost 😬

@tweetypie13 what is the neurologist doing for you then.
I am seeing a neurologist also for daily migraines which started after Prednisone. He gave me Amitriptyline which he hoped would also help the postPMR pain. It helps the migraines thankfully. But that’s all .