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Rapid Progression and autoimmune disease

Parkinson's Disease | Last Active: Dec 24, 2025 | Replies (13)

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@esther589 ,

Here is a link to the Mayo Clinic info on MSA…
https://www.mayoclinic.org/diseases-conditions/multiple-system-atrophy/symptoms-causes/syc-20356153
I was initially diagnosed with Parkinson’s, but after a year everything seemed to be progressing too quickly. My neurologist began to suspect MSA, based on my increasing symptoms (increased falls and balance issues, increased urinary urge incontinence, dripping sweat from my head when exercising, etc.).

I actua

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Replies to "@esther589 , Here is a link to the Mayo Clinic info on MSA… https://www.mayoclinic.org/diseases-conditions/multiple-system-atrophy/symptoms-causes/syc-20356153 I was..."

Sorry, i hit the submit button accidentally…

Anyway, I traveled to the Mayo Clinic in Rochester, MN, where I went through a tilt table test, a brain MRI, and a very interesting sweat test. I then meet with a neurologist who examined me, and changed my diagnosis to Multiple System Atrophy.

I hope this is helpful. If I have any advice to give you, it is to stay as active as possible. If your insurance covers physical therapy, get signed up with someone who is familiar with movement disorders, and can push you to maintain your mobility as long as possible. As the saying goes…if you don’t use it, you lose it!

The two things this disease can’t take from me are my positive attitude and sense of humor!

@flycubs
Thank you.
I hope you are doing much better.