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Rapid Progression and autoimmune disease
Parkinson's Disease | Last Active: Dec 24, 2025 | Replies (13)Comment receiving replies
Has your doctor ruled out atypical Parkinson’s, such as MSA? The progression rate is much higher than regular Parkinson’s. I have MSA, and walking has become difficult very rapidly.
Replies to "Has your doctor ruled out atypical Parkinson’s, such as MSA? The progression rate is much higher..."
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@flycubs
My symptoms started with REM sleep behavior disorder at least 20 years ago - didn't understand the significance for a long time. Then developed orthostatic hypotension exacerbated by hot weather about 6 years ago - still didn't connect the dots. When REM sleep behavior disorder research suggested that up to 80-90% of people go on to develop one of the alpha synucleinopathy disorders it became REAL fast. The alpha synuclein disorders include Parkinson's, atypical Parkinsons (MSA-P or MSA-C) and Lewy Body Dementia. Right now I'm being treated for Primary Autonomic Nervous System Failure and being monitored for the development of one of the above diseases. No tremor, but gait disturbances (mild), slight imbalance, gut issues, urinary urgency, loss of sense of smell, etc. present. I'm meditating, talking to friends and trying to live one day at a time while regularly exercising and trying to stay positive. Hang in there - you are not alone.