@sherrylou51b
Thank you for reaching out , I had my genetic testing done in south bend and they tested for over 100 known connective tissue disorders. They determined I had an undefined gene that was in the HCN4 category and wasn’t to do with my weak aorta but when Mayo Clinic reviewed it their drs said it could very well tied to aortic disease .. it’s amazing sometimes that we are kind of at the mercy of the drs and facilities we go to .. Mayo Clinic has made me feel much more comfortable with this coming surgery and also talking to me and explaining things to me .. top notch surgery center at Mayo I feel like ..