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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Dec 16, 2025 | Replies (338)

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@leene808
As I understand things, we are all likely to have different responses to different treatments for these blood disorders. It’s not one size fits all. The important thing is that everyone involved on your treatment team is communicating with each other to get the best results for you. Sometimes we have to oversee the coordination ourselves.

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Replies to "@leene808 As I understand things, we are all likely to have different responses to different treatments..."

@pineyb YOU are correct! I am a nurse and doing my own research, since this disease is not studied much! I feel like I am educating my physicians! Decided to go to a naturopath to find out more about what is going on! considering switching to a different hematologist. Hawaii's MDs are dwindling. thanks! Leene