← Return to HCM getting worse?

Discussion
kay930 avatar

HCM getting worse?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Dec 31, 2025 | Replies (30)

Comment receiving replies
Profile picture for walkinggirl @walkinggirl

@leenag My cardiologist here in Upstate NY contacted Mayo in Rochester. The people in the office here sent all of the information and I was accepted as a patient. That was in February 2022, received a patient number and invitation to open a patient portal account. First appointment was a phone conversation in May, surgery in July. One must be an insistent advocate for oneself or fall through the cracks - after the phone conversation, I was to receive a call from the scheduling department. No call. Called them after a week. No progress. Wrote on the patient portal - phone call from scheduling department received the very next day. Portal best communication tool once it's set up.

Jump to this post


Replies to "@leenag My cardiologist here in Upstate NY contacted Mayo in Rochester. The people in the office..."

@walkinggirl
Thank you for your message. Do u remember if it was a cardiology dept or a special HCM team. The scheduler at the cardiology which is who I got connected to insists on a in person appt as the first appt. I prefer doing that after they have my data. She is just looking at me as a new pt. 🤷‍♀️