What to do when you are at the end of your rope?

Oh my God… you must feel like Jobe. My heart goes out to you; what a series of nightmares! When I read your question about being at the end of your rope and not knowing what to do I thought of old cliches: tie a knot and hang on or let go. Of course it’s not that easy… those sorts of suggestions sound reasonable but have never worked for me.

Even though my situation can’t compare to the horror of yours, I feel like I have become a science project. I have clear cell carcinoma for which there is no cure. After the routine brachytherapy, radiation, and chemotherapy, and radical hysterectomy… the worst of my misery started when they accidentally poked a hole in the wrong place and from that day forward neuropathy has ruined my life. They claim that it had nothing to do with cutting the wrong thing during surgery (even though all the stabbing pains and numbness started the day after surgery. They said that it was chemotherapy related. This is nonsense. I had finished the chemo and radiation two months before the surgery with no neuropathy issues.

Anyway, I wish you every speck of happiness and comfort that you can find. Thank you for sharing your story. Hang in there. It seems like distraction helps me sometimes.

It will probably make you angry, but I’ll tell you what works for me - and I have a similar medical history. When you feel at the end of your rope seek God’s help. Will He heal you? It’s possible, but I’ve been asking for that for decades now and am still waiting. But He doesn’t promise to heal us here - sometimes we have to wait until we join Him in Heaven for that to happen- and He promises that the healing is guaranteed then. So I’m suggesting that you pray for healing, but sometimes His answer is no, or not yet. What really works, if you are a follower of Jesus Christ, is the knowledge that He is always beside you - and if you ask for His help, He will help hold you up and get you through it. I can’t tell you how many times He has done this for me. Do I get depressed or angry sometimes? Of course, I’m human and sometimes my faith wavers, but even then He gets me through the bad times - and sometimes those bad times seem to last forever. I don’t know if you are a believer, but if you’re not, I highly recommend you look into becoming one. Trust me, it’s frequently the only thing that gets you through and gives you peace.

don't know what hit but my message vamped on me .woosh and gone, so in case you got it anyway i left off with my angels name ( Richard ) man have i given him some workouts, u heard me, yes i believe in angels and miracles. i am one and not afraid to admit i needed the help but have asked for help from Jesus many times, i know you will be pit through rough times to teach us, i guess school is never out. i am not a book thumper but a firm believer. in pain daily but nothing i cant handle, i know angels walk among us and ghosts like in Christmas past thing, hope i have made you smile somewhere here at least in the corner of your mouth. i know my angel has had to call in for replacements and extra support to help cover me. i read all you've been through and your numbers not up yet, im sending you prayers now-------------- Sent only suggestion i have to add is prayer group and chains all praying for you and giving you some kind of relief or better results and being frosty is contagious. message back if you'd like and have a blessed day. Me I'm just praying for as many as i can, even family besides me with cancer, for now mine is not back and I'm praying it don't show up again and same for the tumor.

@jferg01, you have a long and complicated story. I'm sure it was a challenge to write it so succinctly and there are probably many aspects you left out too.

Being tossed from specialty to specialty is a chronic condition of many health care systems, each looking at a person organ by organ but not as a whole. Thank goodness you have a PCP who is your champion and working hard for and with you.

You have experienced the coordinated, multi-disciplinary care at Mayo Clinic and you want to get their expert help again. If I understood your story correctly, you will be heading to Mayo Clinic again in January.

However, you have had unresolved abdominal pain and nausea that needs medical attention sooner than January. Perhaps that is why your Mayo surgeon suggested going to a local specialist, especially if you are unable to travel to Mayo at this time (due to your schedule, cost and/or appointment availability). Do I have that right?

@mbixler my mom was having really bad stomach pan , not sure of the nausea but she had a tumor growing out of her pancreas and into her stomach . would please me greatly if you would get checked. sending prayers --------------- sent. blessed be.

@colleenyoung not exactly. I made my rounds of the local specialists bouncing me back nd forth between them BEFORE i started seeing the team at Mayo. For the first year and a half I was seen at Mayo, they have done great, worked well together, and helped me get started done this path. HOWEVEr, now my mayo surgeon, told me to see a different type of Mayo GI doc, who told me to see a DIFFERENT type of Mayo GI doc, and I am just afraid I am starting the process of being passed from one person to another, with no communication amongst them, and no answers for me, and I can not deal with that again, especially when I am traveling so far, to end up getting the same subpar treatment and lack of an answer(s). So that is why I say I’m at the end of my rope.