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What to do when you are at the end of your rope?
Visiting Mayo Clinic | Last Active: 10 hours ago | Replies (6)Comment receiving replies
@jferg01, you have a long and complicated story. I'm sure it was a challenge to write it so succinctly and there are probably many aspects you left out too.
Being tossed from specialty to specialty is a chronic condition of many health care systems, each looking at a person organ by organ but not as a whole. Thank goodness you have a PCP who is your champion and working hard for and with you.
You have experienced the coordinated, multi-disciplinary care at Mayo Clinic and you want to get their expert help again. If I understood your story correctly, you will be heading to Mayo Clinic again in January.
However, you have had unresolved abdominal pain and nausea that needs medical attention sooner than January. Perhaps that is why your Mayo surgeon suggested going to a local specialist, especially if you are unable to travel to Mayo at this time (due to your schedule, cost and/or appointment availability). Do I have that right?
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@colleenyoung not exactly. I made my rounds of the local specialists bouncing me back nd forth between them BEFORE i started seeing the team at Mayo. For the first year and a half I was seen at Mayo, they have done great, worked well together, and helped me get started done this path. HOWEVEr, now my mayo surgeon, told me to see a different type of Mayo GI doc, who told me to see a DIFFERENT type of Mayo GI doc, and I am just afraid I am starting the process of being passed from one person to another, with no communication amongst them, and no answers for me, and I can not deal with that again, especially when I am traveling so far, to end up getting the same subpar treatment and lack of an answer(s). So that is why I say I’m at the end of my rope.