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HCM getting worse?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Dec 31, 2025 | Replies (30)

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@leenag Hello Again
I started the self referral process with the Mayo Clinic in Rochester and I got connected to Cardiology. They said they cannot do anything unless they receive a referral from my local cardiologist here. Is this what you also encountered. Is Cardiology the right department or is there a dedicated HCM center I should be connecting with. Also they don’t have a tele visit option as a first appt. I told them it’s just a consultation and assessment. I have MRI and ECHO that is from Dec 2025, that I can share etc. I guess if you could kindly share the process and what is involved I would appreciate it. I am in Afib now and not able to travel …….so not sure how all this is going to work. Did you use Rochester MN or another location. Thank you so much for your time and help with navigating Mayo.

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Replies to "@leenag Hello Again I started the self referral process with the Mayo Clinic in Rochester and..."

@leenag My cardiologist here in Upstate NY contacted Mayo in Rochester. The people in the office here sent all of the information and I was accepted as a patient. That was in February 2022, received a patient number and invitation to open a patient portal account. First appointment was a phone conversation in May, surgery in July. One must be an insistent advocate for oneself or fall through the cracks - after the phone conversation, I was to receive a call from the scheduling department. No call. Called them after a week. No progress. Wrote on the patient portal - phone call from scheduling department received the very next day. Portal best communication tool once it's set up.