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emaputric avatar

Insular epilepsy surgery, experiences?

Epilepsy & Seizures | Last Active: Dec 15, 2025 | Replies (3)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@emaputric
Good Morning Ema,
Welcome to our group at Connect!
I'm so happy to hear you're seizure-free now!🙏
There's another member in our group - @zeljmar - whose child also has FCD and underwent surgery. I hope she might be able to share her experience with you.
Are you currently taking any anti-seizure medications? If so, I'd love to hear which ones are working for you.
Chris

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Replies to "@emaputric Good Morning Ema, Welcome to our group at Connect! I'm so happy to hear you're..."

@santosha Hi! Amazing hopefully I get to chat with them that would be of so much help!
I am on my third kind of medicine, first one was Lamotrigine which worked perfectly for one year and after one year my seizures and irritabilities came back, after that I was put on Levetiracetam which was really effecting my emotional state and was making me aggressive, and currently I am on Brivaracetam, which removed my seizures', but the irritability and the feeling of the seizures coming is still present. I am also very sensitive to alcohol, caffeine and lack of sleep. I read that you discovered medical cannabis and avoidance of gluten as major help, that really amazed me and inspired me to start tracking my daily routines to find out what works for me!
I am also curious on kinds of seizures that you have experienced, because for example one of my seizures lasted for 30 minutes where I couldnt talk but I was aware and was able to walk, so I am also curious is epilepsy really the right diagnosis?
Ema