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Metastatic bone cancer with unknown primary: Anyone else?

Cancer | Last Active: Jul 19 6:37pm | Replies (29)

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So those of us with unknown primary, how do you cope? Not knowing is the absolute worst for me personally. I just turned 59, had been in good health and this came out of the blue. When I was diagnosed, I thought, ok, I'll do everything they (Dr's) say and be done with it. Welp, I've done everything my 15 doctors have told me to do & there's no end in sight and no new news on the latest PET scan. It drives me crazy!

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Replies to "So those of us with unknown primary, how do you cope? Not knowing is the absolute..."

@jobo1031
I don’t know where you live but MD Anderson has always been great at finding the unknown primary. I would pursue that.
I vaguely remember that the Sarah Cannon cancer center in Tennessee also had a good reputation for finding unknown primaries but that was quite a few years ago.
Good luck and best wishes!