@dgd1953 Hi I read your post and found it interesting as I am struggling with the ADT. I rec. luprolide in October 21 I believe, really no bad effects once in a blue a but warm goes away fast, tiredness a bit but nothing else out of norm maybe a bit spaced a bit but noticed I’m gained a bit of weight. I go to gym every other day, no strict diet but eat healthy lots of greens etc. I had a Bout 2013 with Steven’s Johnson’s Syndrome (SJS) caused by Bactrin. My urologist knows and I informed him of my fear, he says it’s low risk but literature says to BEWARE! So I’m not sure I will proceed with my next Lupron in Jan 21. I’m supposed to start VMAT and Brachy in Jan. I’m really scared of side effects and am seeking to do PHOTON IN ATLANTA if my insurance approves it. They reviews my records and say I qualify but need to go for in house evaluation too. I live in Puerto Rico- photon is not available yet, I’m running around lost..
You say your urologist talked to your RO and said no ADT necessary. That seems like good communication. Did he say why? Do you know? As I understand it isn’t it necessary at least before starting radiation? I read so many ppl on adt for years to keep Ca under control even thou it returns, sadly.. sorry for the long story maybe you or someone has an insight for me.. running scared and frustrated
Thank you