Intrathecal Pain Pump
I’ve have an intrathecal pain pump for many years, just trying to connect with others that have this device to chat with people about effectiveness and drug therapies.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
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@dcanada54 just had my second pump implanted. The first was a bit more discomfort as they had to run the catheter from my abdomen to my back. Entire waist was 2x the size from swelling. Incision pain was minimal, handled by Motrin 800mgs. Just had first pump replaced. Although this went deeper, underneath the scar tissue pocket from the first pump, again, discomfort from poor drainage and swelling. I’ve got to say the stitches looked pretty good, but have left the nastiest scar I’ve ever gotten. And I’ve had 20 surgeries in 19 years.
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1 Reaction@bilt4pain The only way I know it was 4 mg was that I called the office and called them. I remember how great it felt go have less pain. Later that evening I threw up six or seven times. Maybe that was the result of having such a high dose. This was all after my first test with morphine. I got zero relief from that, but I also threw up pretty much the same later on.
Your contact with me has meant so much. Blessed days ahead, amigo.
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3 Reactions@bilt4pain Sorry, I meant to say that I didn’t do any special preparation prior to the trial. I figure that looking at my pain profile along with the meds I was on, the high dosage was appropriate.
@heisenberg34 we are both in the brotherhood of the Invisible Pain Society. Thank you for the kind words, I often wonder why I I was chosen to endure this life, my Mom said it was part of Gods plan and its purpose would reveal itself. Maybe that’s it.
@heisenberg34 What meds were you on before the pump? Let me tell you mine. 225 mcg. Fentanyl patch, 6, 30mg. Oxycodone, 2, 8 Dilaudid per day. If they they tried to lateral me like you, they would have needed 20ml. of morphine. This resets the pain receptors and why I was pain free on 250mcg. of morphine. 1/4 of a ml. Going cold turkey was hell.
@bilt4pain I often feel the same way. I am reluctant to share my pain with others because they cannot really comprehend what it's like to be in such agony nearly 24/7 unless they have endured something similar. God's Word tells us that the "present sufferings are not worth comparing with the glory that will be revealed", (Romans 8:18).
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3 Reactions@bilt4pain 50 mg Tramadol, 3x/day. 50 mg Diclofenac K, 2x/day. More recently, 150 mg Pregablin, 3x/day. That was to replace the 600 mg of Gabapentin, 3x/day. Of course, let's throw in the 2.3 mg Dilaudid continuous via the pain pump. I will say that since my pain doc increased the dosage to its present level and gave me six boluses daily, each successive bolus seems to take the edge off my pain ever so slightly. Are you now off the pain meds? What is your current pain level? If I don't hear back from you, have a Merry and blessed Christmas!
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1 Reaction@bilt4pain Thank you for your response. I see the pain management doctor tomorrow, hope he’s amiable to me having the pain pump. Was there a complication with your first pump? I’ve read after the implant surgery you must not lift heavy objects and limit activity. Due too my circumstances from the bone cement allergy in my TKR, pain has been a 24/7 occurrence. Now that I know it needs to be replaced, the orthopedic has said I most likely will be in more pain afterwards than I am now. Really a frustrating time for me. Wishing you the best. Sounds like you need a break from all of your surgeries.
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1 Reaction@heisenberg34 I think most like us would. I’m with you 100% on Gods word. I believe.
@heisenberg34 That’s a lot of meds. Got more than one area of pain. Right knee overdue for replacement lvl 7, left hip(replaced 8/21) long story 3-8,
My back, I wake at a 6. Depending on my day or if low pressure, by 6pm I’m 7+. The only reason I won’t respond is if I’m having phone trouble. And the wife that was divorcing me, called that off and moved home 3 days ago. Without discussion or request. My head is spinning. You have a merry Christmas too!