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maggie7816 avatar

Radio frequency ablation

Neuropathy | Last Active: 14 hours ago | Replies (40)

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Profile picture for chronicbackpain25 @chronicbackpain25

Has anyone had one w little or no results... or even worse? I have been suffering from arachnoiditis for 3 years after a botched epidural and spinal fluid leak that left me unable to walk w bladder and bowl issues for months. I Just had the ablation 2 days ago and am in terrible/worse pain. I can't sit and I can only stand w assistance. Lying down isn't even helpful... calling Dr. tomorrow, but not sure they can assist... So frustrated!

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Replies to "Has anyone had one w little or no results... or even worse? I have been suffering..."

I have had SA (spinal arachnoiditis) for 6 years due to a Medtronic intrathecal pain/baclofen pump. I haven’t had relief or even been able to find a doctor well versed in this condition. I have certainly been turned off to procedures. The only real treatment is a new calcium type channel blocker placed directly into the spinal column. This requires a intrathecal catheter, the very same instrumentation that caused all my problems to start with!!

Mayo refused my request for an appointment, saying “I’d had all the requisite testing “, completely blowing off the importance of a good doctor’s evaluation of the tests. Since most of the reimbursement comes from testing I have already had, it makes me wonder if mayo is refusing me on the basis of poor reimbursement.

I hope by now you are feeling better. My dr told me I may have more pain for a few days because of the bruised tissues and to rest a lot. I did and by the second week I was fine and the RFA lasted for about 8 months. I am trying to get another scheduled.

Hello @chronicbackpain25,

I combined your discussion with an existing discussion of the same title:

"Radio frequency ablation"
- https://connect.mayoclinic.org/discussion/radio-frequency-ablation-1/

Here, many members have discussed radio frequency ablation. @brotherchuckles80, @larry68 and @maggie7816 all discussed their experiences and questions with radio frequency ablation and may be able to provide some updates on their situation and successes.

@chronicbackpain25
I’m so sorry that you’re suffering so and hope you get relief soon. 😞