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Chronic small bowel obstruction from adhesions

Digestive Health | Last Active: Feb 12, 2023 | Replies (212)

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@amyp304

Hello Bentley33, I too am suffering from multiple scarring from so many surgeries ( Gall bladder, appendix, Nissen fundoplication surgery, endometrial ablation, removal of one ovary at a time due to cysts, hysterectomy, bladder mesh implant due to hernia on the neck of bladder with prolapse, rectocele implanted, bladder mesh removal, Botox injections in the bladder for 6 months therapy ( bladder uncontrollable spasms/contractions) Interstitial cystitis with unexplained hematuria) finally bladder removal and with Ileal conduit urinary diversion surgery) CT Scans show thickening of parts of intestine and fluid filled sacks???
The pain every day from eating anything is unbearable...It's a every day decision/? to either sleep for couple days and not eat or eat and spend hours upon hours in the bathroom and Stomach awoken yo up so big looks like I'm 7-8 months pregnant??!!Have been to several diff GI's then referred to Vanderbilt Digestive Disease Center in Nashville TN... Test after test..medication changes..diet changes.. They finally told me " We can't help you,and surgery isn't a option here at Vanderbilt" BUT... we will gladly give you referral to Mayo Clinic. Went to PCP about the referral..I was denied!! Well with my PCP persistent as I am to get some kinda help/relief Mayo in MN taking 2nd look at my medical records and history
I just pray they don't turn me down again 🙏🙏

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Replies to "Hello Bentley33, I too am suffering from multiple scarring from so many surgeries ( Gall bladder,..."

Hello @amyp304 and welcome to Mayo Connect,

I certainly can sympathize with your problems. Multiple surgeries and scaring produce a lot of problems with digestion. I have had three surgeries for carcinoid cancer in the upper digestive tract and also have digestive problems. We do have some members who have had success in dealing with this. I'd like to invite @thull and @nancybev to post about their experiences as well.

@thull had surgery at Mayo within the past year that was quite helpful to her.

I am glad to hear that your doctor is pursuing a referral for you at Mayo. It sounds like a good plan.

In the meantime, could you share the type of dietary changes you have tried?

Hello Amyp304, I have had 2 surgeries for perforated appendicitis and then small bowel obstruction, very painful experience, I know how you feel. You may try massage your abdomen and foot bottom (refer a foot reflexology chart), I do a few times every day, it does help me a lot. Hope you will get help from Mayo, good luck!