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Chronic small bowel obstruction from adhesions
Digestive Health | Last Active: Feb 12, 2023 | Replies (212)Comment receiving replies
http://www.laparoscopicsurgeons.com/our-surgeons/mark-reiner.html
I don't know where you live.
I am in NJ. I suffered for 5 years with small bowel obstruction. First, it took nearly 3 years and many doctors to even find out what was happening to me. I finally got a cat scan during an attack that showed small intestinal obstruction.
I don't have to explain the violent pain and long aftermath of the attacks. The fifth-year I was getting them every 3 weeks to a month.
Everyone was telling me surgery would make things worse. I had several hospital stays with NG tubes. I thought this was my life.
Then I found Dr. Reiner and he saved my life. He doesn't take insurance but you can put in the bill (if you have a PPO) and you'll get a decent amount back. To me, it was worth all of the money in the world for my sanity and well being.
I had 4 1/2 feet of intestine taken out on 7/31/17. It was radiation enteritis. I had over 30 abdominal radiation treatments in 2003 for Non-Hodgkins Lymphoma. The attacks started 10 years after my radiation!
I'm passing this on hoping that you find help too.
Wishing you peace, health, and freedom from this nightmare,
Lori
Replies to "www.laparoscopicsurgeons.com/our-surgeons/mark-reiner.html I don't know where you live. I am in NJ. I suffered for 5 years..."
Hi Lori, I’m new to connect and found this discussion group just doing a wide reaching search looking for answers. This past Friday I had an episode and recognized what was coming about 6pm. I knew because I was hospitalized in Feb for SBO. Never heard of it referred to as that and now after reading here for hours I realize that I’m a rookie compared to you and so many others here. I can’t imagine 35 episodes! OMG!!!
As a nubie here I emailed Theresa to ask her how to join this group and not hijack some else’s thread. I write around 4am so I haven’t heard from her yet. Maybe you can help me find the way to join and post here?
I would like to say to you as I will in my own thread that as incredibly informative everyone’s thread is I find it interesting that some of the things that I think are important and I’d like to know about are not included in anyone’s posts. Rest assured I drive doctors CRAZY with my questions, theories, stories, and speculations!
So not to hijack your post may I ask what your diet was like leading up to your first episode? And a little more personally ( you don’t need to answer if it’s too personal ) can you say something about your BM habits? I think this is an important piece of information. I’m blessed and cursed with a memory that freaks most people out. I told people that I could “ read “ my bowel movements and for years I was told that no one talked about BM’s more than me. That said, when I became “ a health nut “ my BM’s were 99% the same everyday and the one part that I’ll tell you here is that after my first sip of coffee in the am I got the call and was in and out in less than 1 minute. The bathroom never smelled. I NEVER need to go in public or at someone else home unless I was staying over. Then in the am my “ routine “ as I called it was exactly the same.
Things changed a great deal when I was put on oxycodone for chronic pain. But I even figured that out after a while and got back to my routine. If I didn’t have a morning BM once a day I knew I was off and had to do something.
May sound strange but I think this part of the story is critically important just my opinion
Hope you’re well
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This was helpful.