Bowel obstructions caused by adhesions following abdominal surgery

Posted by Sandi @idnas, Mar 20, 2015

I just joined this site and am looking to see if anyone talks about bowel obstructions caused by adhesions following abdominal surgery. I had successful sugery for colon cancer in 2008. About 6-months later I was hospitalized for 5 days with a bowel obstruction (that did resolve without further surgery). It took several months for my system to get back to "proper working order," but it did and for the past 5-years everything worked normally. Then, out of the blue, I had another bowel obstruction 2-months ago. I was hospitalized for 6-days, but again, no surgery. At this point I can only have bowel movements by taking Miralax and then I have diarrhea. I'm trying to eat a normal diet, just smaller amounts at a time and more frequently. I'm paranoid about another bowel obstruction, and also that my guy will not get back to normal. Has anyone had experience with this?

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Profile picture for ginpene @ginpene05

This is my 5th SBO with hospitalizan in 18 months, due to adhesions. No surgery yet, but am considering Small Passage treatment. Last 3 times happened in the last 4 months. This is getting old. Any idess?

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So sorry to hear your tale ... I, too, get partial obstructions because of adhesions. I have finally found a nutritionist who has helped me with my diet. She didn't have a lot of recipes, but did make a number of recommendations. And, she reminded me to chew chew chew carefully. I eat low fiber foods, and she suggested going as "low as I can go" in fiber and fibrous food... I also (of course) cut out anything that has given me trouble... so no meat (I guess I could eat burgers, but I've decided just to say no to meat), fibrous veg (like corn, lettuce, celery, kale... anything with fiber or fibers!)... I think this might be forever for me.. because I seem to get as many as 10 obstructions a year if I am not careful. I am lucky (?) because my husband and I decided to go vegan at the same time for different health reasons and we are finding our way together. Basically it sucks! But I find that it sucks less than the obstruction.. so I am very, very careful... and my husband (and my sister and friends who understand) watch me like hawks. You are among friends here! This is a safe place to rant and rave, get support, and feel cared for. Hang in there!

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Profile picture for ginpene @ginpene05

This is my 5th SBO with hospitalizan in 18 months, due to adhesions. No surgery yet, but am considering Small Passage treatment. Last 3 times happened in the last 4 months. This is getting old. Any idess?

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I feel for you both, and can relate!
I think I've finally realized that the problem is more mechanical than anything else, and that it matters less WHAT I eat than what form it's in. I hardly eat during the day, and when I do eat I try to stick with things that could get through a small straw. So I've become the Smoothie Queen!
You can buy good pre-made smoothies, but they're expensive. So I have a bunch of ingredients on hand to run through the blender. I'm going to list them here if it helps; pretty much any combination tastes good and is healthy:
--milk (cow, soy, oat, almond, etc.--they all have different nutrients)

--protein powder--I prefer whey, because it makes things creamier

--Greek yogurt

--bananas!

--frozen berries of all kinds

--peanut butter

--kale and or spinach (you hardly taste them when they're blended with the other stuff)

--canned coconut cream (yummy!)

--rolled oats and flax meal

--firm tofu

--carrot, prune, and other juices

That's all I can think of for now. I'm a vegetarian (not vegan), so that helps. And, not to be gross (but I think the people here will understand!), I keep in mind how various things would taste coming back up again...so meat and seafood would be out anyway. 😱😱

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Profile picture for nancybev @nancybev

I feel for you both, and can relate!
I think I've finally realized that the problem is more mechanical than anything else, and that it matters less WHAT I eat than what form it's in. I hardly eat during the day, and when I do eat I try to stick with things that could get through a small straw. So I've become the Smoothie Queen!
You can buy good pre-made smoothies, but they're expensive. So I have a bunch of ingredients on hand to run through the blender. I'm going to list them here if it helps; pretty much any combination tastes good and is healthy:
--milk (cow, soy, oat, almond, etc.--they all have different nutrients)

--protein powder--I prefer whey, because it makes things creamier

--Greek yogurt

--bananas!

--frozen berries of all kinds

--peanut butter

--kale and or spinach (you hardly taste them when they're blended with the other stuff)

--canned coconut cream (yummy!)

--rolled oats and flax meal

--firm tofu

--carrot, prune, and other juices

That's all I can think of for now. I'm a vegetarian (not vegan), so that helps. And, not to be gross (but I think the people here will understand!), I keep in mind how various things would taste coming back up again...so meat and seafood would be out anyway. 😱😱

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Oh--and yeah--for me I think it WILL be forever. But it's SO worth it for the peace of mind of knowing that if/when I get another obstruction, it might not be nearly as bad. When I think I feel that one might be coming on, I also get up and walk briskly around and stretch backwards and forwards. I figure it just might help whatever is closing/sticking together to open back up again.
Fortunately, there's a lot more to life than food. And a glass of wine here and there should go down pretty easily. 🙂

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Profile picture for bentley33 @bentley33

Hello, I’ve written on here about some of the other problems... Gastroparesis, Crohn’s disease, EOE, slow moving colon, bloating, bruising on my stomach, im sure there is more. My bloating has not gone down in over 6 months. My GI doctor knows that I have a massive amount of scar tissue that could be causing my blockages or obstructions. But no one will do surgery due to the high risk. Basically my inside are cemented together by all the scar tissue. I’ve been going to PT, and acupuncture , to try and get relief. It’s been close to month and not really gotten that far. Does anyone know anything about scar tissue or if the Mayo Clinic has any doctors that deal with it or any studies going on a Mayo Clinic? The pain that comes with all my other issues and the pain and damage my scar tissue is causing along with this bloating is really frustrating. I’ve been looking everywhere to find something or someone and have come up with nothing. Any suggestions???? Thank you

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http://www.laparoscopicsurgeons.com/our-surgeons/mark-reiner.html

I don't know where you live.
I am in NJ. I suffered for 5 years with small bowel obstruction. First, it took nearly 3 years and many doctors to even find out what was happening to me. I finally got a cat scan during an attack that showed small intestinal obstruction.
I don't have to explain the violent pain and long aftermath of the attacks. The fifth-year I was getting them every 3 weeks to a month.
Everyone was telling me surgery would make things worse. I had several hospital stays with NG tubes. I thought this was my life.
Then I found Dr. Reiner and he saved my life. He doesn't take insurance but you can put in the bill (if you have a PPO) and you'll get a decent amount back. To me, it was worth all of the money in the world for my sanity and well being.
I had 4 1/2 feet of intestine taken out on 7/31/17. It was radiation enteritis. I had over 30 abdominal radiation treatments in 2003 for Non-Hodgkins Lymphoma. The attacks started 10 years after my radiation!
I'm passing this on hoping that you find help too.

Wishing you peace, health, and freedom from this nightmare,
Lori

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Profile picture for loriel59 @loriel59

http://www.laparoscopicsurgeons.com/our-surgeons/mark-reiner.html

I don't know where you live.
I am in NJ. I suffered for 5 years with small bowel obstruction. First, it took nearly 3 years and many doctors to even find out what was happening to me. I finally got a cat scan during an attack that showed small intestinal obstruction.
I don't have to explain the violent pain and long aftermath of the attacks. The fifth-year I was getting them every 3 weeks to a month.
Everyone was telling me surgery would make things worse. I had several hospital stays with NG tubes. I thought this was my life.
Then I found Dr. Reiner and he saved my life. He doesn't take insurance but you can put in the bill (if you have a PPO) and you'll get a decent amount back. To me, it was worth all of the money in the world for my sanity and well being.
I had 4 1/2 feet of intestine taken out on 7/31/17. It was radiation enteritis. I had over 30 abdominal radiation treatments in 2003 for Non-Hodgkins Lymphoma. The attacks started 10 years after my radiation!
I'm passing this on hoping that you find help too.

Wishing you peace, health, and freedom from this nightmare,
Lori

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This was helpful.

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Profile picture for nancybev @nancybev

I feel for you both, and can relate!
I think I've finally realized that the problem is more mechanical than anything else, and that it matters less WHAT I eat than what form it's in. I hardly eat during the day, and when I do eat I try to stick with things that could get through a small straw. So I've become the Smoothie Queen!
You can buy good pre-made smoothies, but they're expensive. So I have a bunch of ingredients on hand to run through the blender. I'm going to list them here if it helps; pretty much any combination tastes good and is healthy:
--milk (cow, soy, oat, almond, etc.--they all have different nutrients)

--protein powder--I prefer whey, because it makes things creamier

--Greek yogurt

--bananas!

--frozen berries of all kinds

--peanut butter

--kale and or spinach (you hardly taste them when they're blended with the other stuff)

--canned coconut cream (yummy!)

--rolled oats and flax meal

--firm tofu

--carrot, prune, and other juices

That's all I can think of for now. I'm a vegetarian (not vegan), so that helps. And, not to be gross (but I think the people here will understand!), I keep in mind how various things would taste coming back up again...so meat and seafood would be out anyway. 😱😱

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So helpful. Thanks

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Profile picture for dc10 @dc10

In my case they were able to pinpoint on the CT scan where my obstructions are taking place. They say that there is a thickening in my small bowel but don’t know the cause. So, at this point, I feel comfortable having an amazing surgeon with tons of experience taking that part out. Then it will be analyzed and hopefully, I’ll know the cause.

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We are looking into CC for me to have a second opinion on surgery. 6 sbo's, 2 hernia's, more adhesions than I can count and looking for help - to have surgery to repair hernia's (without ending up with a bag again) and to lyse the adhesions. Can I get the name of the doc at the CC you are going to?

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Profile picture for nancybev @nancybev

I feel for you both, and can relate!
I think I've finally realized that the problem is more mechanical than anything else, and that it matters less WHAT I eat than what form it's in. I hardly eat during the day, and when I do eat I try to stick with things that could get through a small straw. So I've become the Smoothie Queen!
You can buy good pre-made smoothies, but they're expensive. So I have a bunch of ingredients on hand to run through the blender. I'm going to list them here if it helps; pretty much any combination tastes good and is healthy:
--milk (cow, soy, oat, almond, etc.--they all have different nutrients)

--protein powder--I prefer whey, because it makes things creamier

--Greek yogurt

--bananas!

--frozen berries of all kinds

--peanut butter

--kale and or spinach (you hardly taste them when they're blended with the other stuff)

--canned coconut cream (yummy!)

--rolled oats and flax meal

--firm tofu

--carrot, prune, and other juices

That's all I can think of for now. I'm a vegetarian (not vegan), so that helps. And, not to be gross (but I think the people here will understand!), I keep in mind how various things would taste coming back up again...so meat and seafood would be out anyway. 😱😱

Jump to this post

Hello All: I'd like to add to the list of @nancybev. I use peanut butter powder. It mixes quite nicely in a blender *less sticky" and provides lots of protein. If you have to watch cholesterol, it is also far lower in fats than peanut butter in the jar. When I buy bananas, I slice several in half and put them in sandwich baggies and freeze them so they are always available. Frozen fruit gives a morning smoothie a very frothy taste and texture which I think is more palatable.

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Profile picture for ginpene @ginpene05

This is my 5th SBO with hospitalizan in 18 months, due to adhesions. No surgery yet, but am considering Small Passage treatment. Last 3 times happened in the last 4 months. This is getting old. Any idess?

Jump to this post

How do you find out if you have a small bowel obstruction?

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Profile picture for tigreyes2004 @tigreyes2004

How do you find out if you have a small bowel obstruction?

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For total obstruction Waves of pain. It subsides and starts again Sometimes it starts by saliva uncontrollably
Than dry heaving than the waves of pain.
A partial can be anytime up to three hours after you eat. You may have bloating
Your loose pants become very tight and stomach pains. Usually subsides after a couple hours
Does not go away by itself. It only gets worse so it needs to be addressed.
As you can tell, I've had many

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