PRRT side effects and results

@ricki8 It is the times where patients have access to internet and AI information that is frequently incorrect or not relevant. Not that long ago, patients didn't have Google, ChatGBT, or elsewhere to look up information. I have asked members of my care team how do they manage that with patients. They say that addressing incorrect or misinformation found by patients on the internet often takes up more appointment time than discussing tests results and treatment planning. I try very hard to never schedule any appointments at the end of the day for this reason. They are rarely on time. Also, the healthcare folks are frequently frustrated by then. They are human after all. I too prepare questions prior to my appointments, but I let the healthcare professionals talk first. I have found that most of my questions get answered. That allows way more time for me to ask the questions that don't. There is a balancing act in the doctor patient relationship that requires give and take on both sides like any other relationship. I try to remember that. I want to make sure that I get the best care possible.

Thanks @tomrennie

I both agree and disagree with gathering as much information as possible. Knowledge helps one frame the whole picture and often, one can recognize poor info. My Oncologist keeps me waiting 1 1/2 hrs. as she is incredibly busy and limits the amount of time with each visit to 15 min., so I am scrambling to get my questions in and understand the current picture. It helps to use their wording (of which I pick up when researching). I try to keep my research to valid sources i.e. Mayo Clinic. My family dr. will only allow one question. So......it might be different in other countries, but in Canada (where most healthcare is free, there is a major backlog. I have also made recommendations to my doctors and actually saved my life, so........................

@ricki8 I completely agree that being well informed from valid sources like Mayo can be incredibly helpful. To me, knowledge learned from medical resources is a great tool for a patient to self advocate for the best care possible. I believe it is a large part to why I am still alive after my stage 4 pancreatic cancer diagnosis in 8/22. Good for you.

@tomrennie In your response, you said you agree because info helps you advocate but I didn't see or understand where you disagree. Please explain thanks

@doonman I am not sure that I understand the question?