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One year in and struggling

Caregivers | Last Active: Dec 19, 2025 | Replies (36)

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Profile picture for bano @bano

I just read your post and as of this morning started following this group. You sound like me! My husband had bilateral lung transplant in 2024 and there were complications as he was in the hospital for 66 days. I suddenly became a resident of Rochester for 7 months. While he is stable now and we've been home for some time, he doesn't have the energy/stamina he had prior and suffered quite a bit of muscle loss during the extended hospital stay. We are all so glad he survived and grateful! That said, I am a full on caregiver. I do the meds, make sure we have 2-3 weeks ready at a time, call the pharmacy for refills, schedule appointments, clean the house, walk the dogs, buy groceries, cook, it's exhausting at times. I'm not complaining, this is simply my reality. He is immunocompromised for life due to the meds he is on so hiring help to come in for cleaning etc isn't a good idea. I became so fatigued last Spring I saw an integrative Dr. and I decided to go on BHRT pellets (hormone replacement therapy) and my T3 was low normal so I was also put on thyroxine/levothyroxine. Not suggesting this for anyone, just discussing what I did. It has helped quite a bit. I do have better energy and arthritis in my hip disappeared. Aside from this, I take time when I can to walk with my friend for an hour or so on occasion. We live 25 miles apart so it's when we can. I also made a comittment to exercise in the morning before my husband gets up, before the day really starts. I tell my self when I don't feel like it or am tired, it's consistency that matters now how much I do, so some days I do less than others but I always feel better afterwards and better able to handle the day. It's going to be lifelong for us in this mode so I'm trying to improve my health as much as I can. We have to take care of ourselves. Oh and I love audible to listen to while out walking alone or with my dogs, it's a great break! If in the woods I prefer to hear nature. Hang in there, you are not alone!

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Replies to "I just read your post and as of this morning started following this group. You sound..."

@bano Thanks so much for sharing. I wasn’t complaining either, just getting used to the situation. So thankful hubby is still here with me, and through everything he has the best attitude. Absolutely adore him. I agree - love listening to nature! I think the focusing on my own care is the next piece of the puzzle. Thanks again