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Seeking connection - congenital cataracts
Hello,
I’m an adult who was born with congenital cataracts and am now also a parent to a daughter with the same diagnosis.
I’m not looking for medical advice or caregiving questions. I’m hoping to connect—ideally one-to-one—with another adult who had congenital cataracts themselves and is now raising a child with the condition, or something very close to that experience.
This has felt like a very specific and quiet space to be in, and I’m mostly hoping for mutual understanding rather than problem-solving.
If that describes you and you’re open to a private message, I would appreciate hearing from you.
Thank you for reading.
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Welcome, @arielbloom. I'd like to bring @renm into this discussion, whose grandson have congenital cateracts.
You might also appreciate this video by Dr. Erick D. Bothun, Mayo Clinic pediatric eye surgeon, explains: Yes, babies and children get cataracts, too:
- Diagnosis and treatment of pediatric cataracts [Video] http://medprofvideos.mayoclinic.org/videos/yes-babies-and-children-get-cataracts-too-diagnosis-and-treatment-of-pediatric-cataracts
Has your daughter had surgery?
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1 ReactionThank you! My grandson is six yr old now.
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1 ReactionThank you for the welcome and for including @renm. I’m mostly hoping to connect with someone who has personal experience with congenital cataracts, either as an adult who had it themselves or a parent raising a child with the same condition. If @renm or anyone else with similar experience is open to a private message or one-on-one conversation, I’d love to hear from you. I’m not seeking medical advice at this time.
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1 Reaction@arielbloom I can tell you what I know. My grandson was diagnosed when he was just a few old. I’m ok with communicating either way.