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JAK2 Mutation - Effects and Questions
Blood Cancers & Disorders | Last Active: Dec 16, 2025 | Replies (338)Comment receiving replies
@leene808
I have a very good Hemo/Oncologist/researcher at University of Louisville Hospital. He says that iron supplements are not a good idea for us PV folks as they tend to stimulate RBC production… and undoes the work that the HU is doing. Your PCP won’t know that. So nail down your hematologist on that… don’t let him get away with not sharing information.
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@pineyb thank you for enlightening me to this information. I wondered about taking Ferrous Gluconate 324mg. only 3 days a week. It seems like a large dose. This makes sense as to the effects of Iron on the blood. My ferritin level was 3.5, which is way below normal. I was feeling extreme fatigue. Since I have been taking it, I have had more energy. But I will bring it up and see what the plan is for keeping me on it. Yikes. ! Leene