← Return to HCM getting worse?
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Hypertrophic Cardiomyopathy (HCM) | Last Active: 10 hours ago | Replies (24)
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Replies to "@mpjg Thank you for words, they are encouraging, I am sure my card team here in..."
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@cash298 I found that sometimes you do have to take the lead. I've mentioned elsewhere that the local cardiologist that read my echo (which clearly screamed obstructive hypertrophic cardiomyopathy) in Sept 2023 only recommended another echo in a year despite many moderate to severe findings. Luckily I was concerned and made an appointment with a cardiologist @ Penn Med although I had to wait several months. She took one look at the findings and immediately suspected HCM and referred me to their HCM specialist. Penn Med is a COE and after additional testing, I was started on Camzyos in Aug 2024. Before I was started on Camzyos, the staff discussed different payment pathways and they did all the work. I have had to pay very little for the medication. Take it easy (emotional stress affects my heart), seek the best care, and advocate for yourself.