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Support from Others Facing MCI

Apr 8 12:06pm | Dr. Melanie Chandler, HABIT FL Director | @drmelaniechandler | Comments (4)

One of the aspects I often hear from participants in HABIT was how much they benefited from meeting and talking to others who have been diagnosed with Mild Cognitive Impairment.  The same is true of the partners.

So, this week, I thought I'd encourage you to post your words of encouragement for each other.

 

How do you experience memory loss?

What has helped you navigate your memory loss?

What has helped you cope together as a couple with your loved one's cognitive changes?

Other thoughts?

 

I'm hoping to hand the writing over to you guys on this one.  It's an experiment.

Let's hear from you! 

1 Reaction

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SusanEllen66 | @SusanEllen66 | Apr 18 10:51pm

I have dementia. The doctor haven’t given me the news about which one, but he said it appears that I have FTD.

For myself, I have joined Dementia Alliance Assoc. DAA. I have made friends with others with dementia via ZOOM meetings. The meetings are run by other dementia patients and they give us a way to encourage each other by comparing experiences, and solutions to common problems. The best thing is I can do it from home, and I can enter and leave a meeting whenever.
I live alone and don’t have a caretaker, so this is wonderful!

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Dr. Melanie Chandler, HABIT FL Director | @drmelaniechandler | Apr 22 1:55pm

Thank you for sharing! It can be difficult to find support resources for those with the diagnosis of dementia. I'm glad you found a place you feel supported!

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theglobalnomad1 | @theglobalnomad1 | Nov 30 12:24pm

We both agreed the HABIT program was excellent, Melanie, and would consider it imperative for anybody with MCI and caregivers. I would actually suggest that Mayo put together a similar program for more advanced stages of dementia, too. I would love to have some nuts-and-bolts techniques for mentally dealing with my partner's anger and frustration which, by default, is usually directed at me! I do understand that it is the disease causing it, but it is really wearing to be constantly blamed and barked at when we aren't able to communicate or when he is angry and irritable throughout the day.

The people I met at HABIT were great, and the participants at various stages of MCI, but they're weren't any concrete suggestions on how to defuse the anger or deal with the seemingly constant anger and negativity directed at the only person always around.
Thanks for any suggestions!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 12 8:44pm
In reply to @theglobalnomad1 "We both agreed the HABIT program was excellent, Melanie, and would consider it imperative for anybody..." + (show)
Profile picture for theglobalnomad1 @theglobalnomad1

We both agreed the HABIT program was excellent, Melanie, and would consider it imperative for anybody with MCI and caregivers. I would actually suggest that Mayo put together a similar program for more advanced stages of dementia, too. I would love to have some nuts-and-bolts techniques for mentally dealing with my partner's anger and frustration which, by default, is usually directed at me! I do understand that it is the disease causing it, but it is really wearing to be constantly blamed and barked at when we aren't able to communicate or when he is angry and irritable throughout the day.

The people I met at HABIT were great, and the participants at various stages of MCI, but they're weren't any concrete suggestions on how to defuse the anger or deal with the seemingly constant anger and negativity directed at the only person always around.
Thanks for any suggestions!

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@theglobalnomad1, there are few discussions about defusing or helping to manage anger in the Caregivers: Dementia support group. You may wish to join one of these:
- Anger. Guilt. Anger….cycle https://connect.mayoclinic.org/discussion/anger-guilt-anger-cycle/
- Blaming and anger: How do you deal with it? https://connect.mayoclinic.org/discussion/blaming-and-anger/

See others https://connect.mayoclinic.org/group/caregivers-dementia/

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